Dystonia Support Group

Dystonia (literally, "abnormal muscle tone") is a generic term used to describe a neurological movement disorder involving involuntary, sustained muscle contractions. Dystonia may affect muscles throughout the body, in certain parts of the body, or may be confined to particular muscles or muscle groups.

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Posted by: MrsIssa

Posted: 02/25/2019

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I'm new to this group I have had dystonia for many years I was diagnosed at 9. Its just recently since the birth of my... READ MORE
Cervical Dystonia and exercise

Posted by: andreaz

Last Reply: Phoenix62 02/12/2019

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Hello, I am wondering if anyone else has sypmtoms when exercising? I noticed my neck involantarily pulling to the... READ MORE
I'm new to this group

Posted by: 3mvassurvivor

Last Reply: Phoenix62 02/11/2019

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Having trouble dealing "everyday" with having Dystonia..especially when not too many people have it and no one I know... READ MORE
Dystonia or something else

Posted by: Cabbit95

Posted: 12/30/2018

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When I was 16 I was diagnosed with generalized dystonia and they put me on a medium level artane. At 19 after a night... READ MORE
New here, new to Dystonia

Posted by: singer_52

Posted: 11/08/2018

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I have had some medical problem or another since I was born. Just when I finally feel like me again and I was sure of... READ MORE
New

Posted by: riverwatch

Last Reply: riverwatch 07/16/2018

1

Hello, I’m new to this group, I was diagnosed with cervical dystonia about 1-1/2 years ago and have been trying... READ MORE
I am new here. Just diagnosed

Posted by: Suttos21

Last Reply: Suttos21 06/23/2018

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I have cervical dystonia as of now but i am already feeling more tightness in my legs now as well:( i also have alot... READ MORE
17 years old when my life turned upside down

Posted by: Emi13

Last Reply: Emi13 06/04/2018

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I was 17 years old when my life turned upside down...it changed forever....before that I was a healthy, happy,... READ MORE
New symptoms help

Posted by: Juls

Last Reply: dbwole338 06/04/2018

2

I have had dopamine responsive dystonia since I was 17. Now that I am 23 almost 24 i have received new symptoms. I have... READ MORE
Dealing with dystonia

Posted by: Daz2170

Last Reply: dbwole338 06/04/2018

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Hi , my name is Darren and I've recently been diagnosed with dystonia. I suffer with it in my hands and legs and also... READ MORE
Side effect of essential tremor disease

Posted by: dbwole338

Posted: 06/04/2018

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My name is Denise Troy, I have essential tremors and also stutter and have seizures. My disease has progressed very... READ MORE
medical alert system

Posted by: MichaelWhite54

Posted: 09/20/2017

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I came to your site in search of a normal medical alert service, my grandmother suffers from dystonia and sometimes... READ MORE
Has medical marijuana helped anyone with Dystonia?

Posted by: AlicP1990

Last Reply: donna1216 08/08/2017

1

I would like to know what can make my life easier with the dystonia. It keeps on getting better these days, because... READ MORE
Hi my name is Paula and I am new to this group.

Posted by: PaulaSully

Posted: 02/23/2017

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I was diagnosed with Parkinson's disease in 2009. The Dystonia started about a year ago. I have it in my left foot... READ MORE
Hi, Im new

Posted by: Rbear66

Last Reply: Juls 11/26/2016

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I was just diagnosed with dystonia, they didnt say what kind but it seems to effect my neck and jaw mostly although I... READ MORE