Endometriosis Support Group

Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.

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  • Clairebear1990

    What is wrong with me?

    Hi there,I'm just wanting to introduce myself. Im 27 years old I've had strange periods since I was about 16. At 16 I had stabbing pains in my stomach and I bled through my clothes every 2 weeks or there abouts. At that time, they said I had polycystic ovaries (nothing about my womb) and put me on the pill. Now I've been on this pill for about 5 years with regular, heavy periods but not as bad as...
  • Prayingforacure

    I wouldn't wish this on anyone

    I was diagnosed with endometriosis about 3 years ago when I was 25. I've always had the typical painful periods. But then it got so bad that I was in the emergency often because I really thought my appendix of gallbladder needed to be removed. And I felt like I would die whenever I would have a bowel movement on my period. Everything has pretty much been localized to my right side. Last year,...
  • Adri326


    Hi. I am new to the group but not to endometriosis. I was diagnosed when i was 25 during my first of three laps. I am now 37. For the last 7 years I've been on various birth control pills to keep the pain and cysts to a minimum. Because of the pill I didn't get my period for 7 years. I am also hypothyroid and maybe have pcos (I failed the ogtt miserably and have had high testosterone at times,...
  • BeachGirl410


    I've never had a UTI before so I'm not sure if this is even what is going on. A little background first, I have endo but don't usually have any daily endo pain or anything. But after I got my first lap in Nov. '11 to remove large chocolate cysts from both ovaries, I get lower back pain much more often. Anyway, for the past few days I've noticed my lower back has really been bothering me,...
  • Mamahartin

    Endometrosis and marriage

    Hi ladies, I am really glad that i found rhis group am hoping that maybe someone somewhere can offer some advice. I am 30 years old, married for 12yrs and have a beautiful 12 year old daughter. I was diagnosed about 2 years ago and told that on top of that i had 2 cists and both tubes blocked. I have wanted nothing more that to give my daughter a sibling and now as a woman and mom i am not able...
  • lucillegem

    it wont stop

    I am fustrated. Tired.Damn nurses, at the hospital is no help! I hate taking birth control pills because the bleeding causes severe cramps and lower back pain.feeling a but helpless atm and bad. Anyone know a good pain killer I can take?
  • SabineD

    My Story

    Hello, I am 19 years old. I was diagnosed with endometriosis in January 2017, though I have been struggling with my periods for about nine years. I started my period when I was ten, and the bleeding has always been quite heavy but the pain, over time, has gotten worse and worse. My pain is at a constant 6/10 and only goes up from there, it is most painful between my hips through my uterus,...
  • Nickie1004


    Hello to everyone. I am new to this group. I decided to join because I have suffered with endometriosis for several years now. I also still have my fribroids, although they have gotten smaller. I had a laparoscopy and hysteroscopy this past March and I also had some scar tissue removed. Needless to say, I am still in pain. I recently had bladder surgery to remove some stones. My bladder isses are...
  • Victoriaelise3811


    Hi everybody! I just found out that I have endometriosis and the pain has been unbearable lately. I try to explain to my significant other how awful I have been feeling lately and he doesnt understand. I know I am not alone, but that is how I feel. Completely frustrated.
  • Mastiffmomma

    Hopeless and sad

    I am 23 yo almost 24 and I was officially diagnosed about a year and a half ago. I started having unknown Symptoms when I was 12 and my obgyn put me on the depo, my pain was gone, fast forward 7 years I was engaged to be married, we both want children so I got off the depo 2 years before marriage, and started having the horrid pain again after 6 months I spoke to my ob again and she tells me,...
  • lhunter2

    29 and in menopause

    hi all...i was diagnosed 15 years ago but never had treatment until about 6 months ago. This is awful. The loneliest, scariest, and hardest thing I've ever been though. I'm 29 years old and they have me on lupron and have no hope of conceiving children. Sex with my husband is if not impossible, excruciatingly painful. I sleep at least 12 hours a day. A year ago I was the director of a successful...
  • Jeribeautiful


    Hi I am a young women that was  diagnosed with Endometriosis a little over five years ago. I had a hysterectomy almost two years ago. I know that it don't cure it. I'm still having pains on my right side where my Endometriosis started. I been looking for support groups for years. I want to meet other women that are going through what I am going through.
  • Isolated


    I have had endometriosis for about 6 years now, I have tried everything and am currently waiting to see a pain management clinic which can take up to a year.... the pain is constant it never goes away and causes nauseous and vomiting that can last for up to 10 days during which  I can no longer eat solid food, I spend at least an hour every morning unable to move and in tears while I wait for my...
  • endo1234

    Life stolen by endometriosis

    hi there all, so I'm just wanting some advice from those that have experienced what I'm currently going through... so so I'll start of by telling you a bit about my self, I'm 17 years old last year of school diagnosed with endometriosis on march 8th of 2017 and basically it has distoried me. The doctors have had suspicions that I had endometriosis at the age of 12 but they didn't want to go a...
  • Nya

    Experiences with endometriosis flare ups

    Hey everyone, I'm 21 and have suffered debilitating periods for around 8 years. This month however after my period ended the pain did not stop infact it kept getting worse and worse as my cycle has gone on. I've been told for the last year its a sure thing I have endo and I just need a lap to make it official. I also have a bicornuate or "heart" shaped uterus which I've been told is not...