Endometriosis Support Group

Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.

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  • ashleyeliza314

    Lupron?

    2
    I am twenty-two and have had three laparoscopies over the last four or five years. I have continually been on implanon or nexplanon birth control, as estrogen makes my symptoms worse. The birth control helps but recently my symptoms have become terrible. My adhesions usually affect my bowel and it causes gastrointestinal issues and a tugging feeling. Additionally, my pain is out of control. I...
  • Hi all, I have asked my GP several times now to refee me to gynocology and she won't do it,she believes she can find out whats wrong with me by herself. Im on my second lot of controceptive pills as the others did nothing to stop the cramps and made my bleeding a lot worse. I ended up getting my partner to take me to hospital because I was bleeding so badly and it was day 10 of the withdrawl...
  • Mandolin

    Anxious and waiting.

    1
    Hello. My name is Amanda and I'm 32 years old. I was diagnosed with severe (stage 4) endometriosis at age 13 after battling terrible heavy periods and chronic pain for 5 years at that point. I have had 9 laps, and 1 ectopic miscarriage. (VERY) Long story short, I have a 4-year-old son who was conceived naturally years after my ectopic. Once my son was born I began a new therapy (since oral...
  • deleted_user

    pain management?

    i hear alot about pain management clinics and such, but i live way out in the sticks. what exactly is a pain management dr' and what does it all consist of.....are they just prescribing meds or do they work with each person as a whole package and find alternatives, therapy and such?????just wondering cause this may be my next step.....
  • I want to, because standard issue pain meds have caused bowel to be partially obstructed. I'm told that CBD:THC oils/tinctures can be healing for gastrointestinal pain and inflammation. My state isn't legal. CO is a world away from me, literally and figuratively.I'm existing, not living, with primal scream pain from choked bowels/bladder. Surgeons won't touch me once they see the Frankenstein...
  • hi, I'm new to this group. I currently found out I have endometriosis almost 2 years ago after I tied my tubes. I usually had problems with fibroid tumors and cyst which 1 had ruptured. I hadn't had any complications til several months ago from my endometriosis. It has been getting worse and worse lately. I'm scheduled to meet with a doctor who is going to perform a hysterectomy in a few weeks. I...
  • Hi, I am 43, had a hyterectomy probably 6-7 years ago after being mis-diagnosed with menorrhagia, having ablation surgery, etc. Once my OBGYN was in there to remove my uterus he realized I had endo and that it was everywhere. He removed what he could but left my ovaries in since that was the plan and what I signed for. After surgery I was still in pain, tried all kinds of stuff including pelvic...
  • Christy

    Extreme hip pain

    2
    Hi everyone! I'm new to this group but very greatful I found it! I'm 32 yo with endo and reaccuring cysts. I've had two c-sections, which from what I've been reading can make the endo worse. My doc tied my tubes after she was born. I've had pain in my right hip around my menstrual cycle since having my last child almost a year ago. This past week I went to the er with a ruptured...
  • I just currently had my second laproscopic surgery on May 27th. I have been on every birth control out there including the lupron shot. They put in the merina iud for the second time and once again my body is throwing out all kinds of horrible side effects. The doctors demand that I need to be on BC but my body says otherwise. What should I do as my next step? I am at a total loss. I was...
  • epicgurl

    So much pain

    4
    Hi everyone I am scheduled for lap.surgery on the 27th and I am in so much pain right now I don't know what to do. I have a seperated complex cyst and my Dr believes I have endometriosis. I feel so alone and scared no one around be knows how much pain I am really in.
  • Rochelle43

    Anyone with this?

    2
    I suffered for a long time with bloating and aching in my upper abdomen and lower back. Had tests done, only for all of them to come back clear. Finally it was ruled that I had abdominal strain, and I was given a script for physical therapy. This did help tremendously. However, the lump in my belly button (forgot to mention that) was still there and irritated. (I was told this was a cyst by...
  • Hello All Is it possible to develop endo all of a sudden at age 42? It is not in my immediate family. The only one I know of is the second cousin on my mom's side. I plan on calling my gyno monday but right now Im in constant pain.Any input welcomed :) xoxo
  • Kitkat59

    Intense pain

    0
    I have a deep family history of Endo and have always had really bad periods since I started when I was 14. I've tried the depo shot and also the nexplanon implant in the past and they both made my periods wayy worse than they already were. In the last six months or so my periods have progressively gotten much worse. In the last two months I've been getting excrutiating cramps and lower back pain...
  • BrittVA

    At A Breaking Point

    4
    I haven't been diagnosed officially yet, but my doctor is recommending the surgery after trying birth control. I have so many questions and feel overwhelmed.Timeline -I've always had unusually painful periods. Like most people, I thought this was normal. 5 days of bleeding and every two hour tampon switch.-November: Bled during intercourse and was in pain.-January: Bled even more during...
  • I'm 19 years old. I had emergency surgery two months ago because my doctor thought my appendix was rupturing. I woke up later to find out it was chronic pelvic pain due to Endometriosis, (which I had never heard of.) I was told by my doctor that the pain would most likely never go away until I had a hysterectomy. I was also told that there may be a chance that I would not be able to have kids. I...