Endometriosis Support Group

Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.

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  • wonderwoman1118

    SO FRUSTRATED! Round 3? or...?

    Hi friends and fellow endo sufferers,I am new here and need to vent (SO badly) and bounce ideas off of people who actually understand what I'm talking about! It's probably going to be long winded, here we go...For starters, I'm 24, a newlywed (got married just over a month ago), and have been diagnosed with endometriosis (at 18), interstitial cystitis (at 19) and hypertonic pelvic floor...
  • justjakes88

    New to the group

    Hello everyone. I am new to the group and just looking to see if anyone is experiencing what I am. I am 29 years old and was diagnosed with endo about a year and a half ago. I have always had painful periods, even though I have been on the pill since I was 19. Endo is hereditary in my female, my mother had it and had a full hysterectomy in her late 40s. I got diagnosed due to pain and numbness in...
  • proudmama1508

    Maby endo?

    I'm on here as I have been searching for someone who may be feeling the pain I do . So long story short I have had cysts and painful periods since I was about 16 I am now 30 . For the last 2 years I have been in and out of the hospital for what I thought was my kidneys . The pain is more frequent my pelvic area starts hurting as cysts form a few days after my period then burst but it still hurts...
  • Katie1991

    Sick of feeling like this :(

    Hi, I'm not sure of I have endometriosis yet or not but want to write here anyway. My doctor sent me for a ultrasound and transvaginal scan as she thinks I might have endometriosis. The scans came back saying I had a thicker than usual lining at the top of my womb and she has referred me to a gynaecologist to see if it's endometriosis or a fibroid or to see why my lining is so thick. I am 26 and...
  • Angelica26


    I have had 6 surgeries for endo. Lost one ovary and the most recent surgery the doctor found a hernia. I am tired of this up down game and I need help to stay positive until I can talk to the doctor.
  • WellThisSucks

    Post surgery (#4) fo Endo

    I saw a specialist and had robotic surgery to remove all endo and scar tissue caused from tissue in may, and I feel like my immune system is just not bouncing back. Before this last surgery, I was in bed for almost a year due to severe pain when breathing (and everything else basically) because all of my insides were stuck together. I lost a large portion of my muscle, so my recovery seems very...
  • lucillegem

    Medical Exams

    I have an ultrasound coming up, and I am anxious about it since its painful for me. Does anyone else have pain when getting medical exams?  :( I tend to avoid them because it hurts, esp. as I think one of my symptoms of endometriosis is bladder control. I get pain from a "not so full bladder", and just imagine having to be forced to drink water and have someone push on your pelvic area, its...
  • Prayingforacure

    I wouldn't wish this on anyone

    I was diagnosed with endometriosis about 3 years ago when I was 25. I've always had the typical painful periods. But then it got so bad that I was in the emergency often because I really thought my appendix of gallbladder needed to be removed. And I felt like I would die whenever I would have a bowel movement on my period. Everything has pretty much been localized to my right side. Last year,...
  • Snflwrfrnd

    pain management while working/cannabis?

    Hello ladies, I just got a new job and it requires me to be on my feet a lot. It's a retail store which means that I'm standing at a register, walking around a lot, etc. I have been lucky enough that I've been resting for the last two weeks since I was in the ER for pain and blood in my urine (it was determined to be related to endo and the cyst I have) which has been a HUGE HELP in managing my...
  • deleted_user

    I am confused about finding an endo specialist

    I have been doing some digging in regards to finding a specialist, especially one with payment plans for patients with no insurance, in the Dallas, TX area. However, online all of the people I am finding are fertility doctors and talking about IVF and stuff.I am not looking to have any more children so not really interested in that. Does anyone know how to find a regular endo specialist, or are...
  • wildorchid81

    endo and hypoglycemia

    I was just wondering if anyone experiences hypoglycemia along with endo. I've read a few medical articles that state there can be a correlation between the two... may just be two totally unrelated things. I just found it ironic that I did not start experiencing the hypoglycemic symptoms until my latest flare ups and hormonal issues... Just wondering.
  • bizrover12

    Is it endo? Wits end!

    So it started last tuesday.. I just thought my period was 11 days early but just light spotting.. didn't think anything of it and survived the pelvic cramps, low back ache and bloating it then continued Wednesday and pretty much stopped Wednesday night early Thursday morning. I then started to think ?implantation.. did preg test Friday, Saturday all negative. But during this time the pain...
  • Alia16

    First laparoscopy

    I have had just about all the symptoms for endo starting within a year or two of starting my period but doctors always brushed me off as normal. When I was 18 my doctor suggested I had endo and put me on birth control, it was horrible. Long story short, this last year has been absolutely miserable and I finally got a doctor to do a laparoscopy because I was convinced I have endometriosis and...
  • Hello, I just turned 18 this September 2 and I was diagnosed with endometerosis when I was 15. I started having extremely bad pain during sport pracitces and would cough up blood in the middle of hte night and eventually I go the endo surgery and was for sure diagnosed. I just had my second surgery on April 5 and I am already have pain again. Also about two years ago I got a IUD put in to make...
  • livingly

    Periods and endomitrosis

    hi for a while for medical reasons I've been on birth control that has prevented my period. Soon my doctor will be having me start a new form of birth control for medical reasons and this kind will let me have my period but controlled  and I wanted to know what a period with endometriosis is like.