Endometriosis Support Group

Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.

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  • Stephieb28

    Newbie trying to cope

    2
    So...I'll start by admitting I have never done anything like this online before. I feel kind of silly and like I'm complaining about my situation when it could be much worse. I need to let it out ...talking to people without endometriosis helps, but it makes me feel less crazy to hear people with endometriosis have felt the same as I have if that makes sense. I guess to continue, my story is...
  • xojp13

    Symptoms

    1
    hi all,I was diagnosed with endo 5 years ago. I'm having new and worsening symptoms so my doctor has scheduled me for another lap in 3 weeks. I just want to know if I'm crazy or if you have had some of these symptoms too..Lately I've been getting horrible cramps with a full bladder or after I empty my bladder. It's also painful to orgasm or be aroused. Also sometimes when I have episodes of...
  • hello everyone - this is my first time in an online support group but I'm at my wits end and will try anything!!to begin, I'm 41 years old and was diagnosed with Crohn's disease when I was 26.  Since then I have had bouts of horrific pain which have intensified the older I get.  Throughout all of these years they blamed the pain and chronic UTIs on the Crohns but I always felt that there was...
  • Isolated

    Advice

    3
    hey there I know this is long but I really need the advice so please someone if you don't mind help me I'm almost 22 I have second degree endometriosis I have tried many forms of medications for treatment and have been unsuccessful I had surgery to remove and biopsy the endometriosis tissue almost a year ago I was told there was a lot of endo found ... the surgery and medications afterwards have...
  • Kwarrior

    Stage 5 Endometriosis

    1
    I had surgery in Sept to remove one ovary and had a bowel obstruction week later. Now I was told may need another surgery to remove the other ovary and try to clean some of the end off. The pain is unbearable. Just had surgery and to think I may need another one.I can't take depo or any birth control because side effects I had years ago. That's not an option for me. Anybody experience stage 5? If...
  • I have been in horrible pain for the last three weeks! My endo pain was gone during treatment with Lupron. About 4 weeks after my last injection my pain can back worse than it was before! It is more intense in every aspect of my life. I can barely make it through the day. And to make it even worse...I am 7 months away from graduating from dental hygiene school (which for those who don't know...is...
  • Patients with endometriosis often have the symptoms of Painful bowel movements and stomach. Women often feel the abdominal pain that is associated with the poor menstruation. Generally, these may be called “normal female aches and pains”. These symptoms have implied a bad condition, which is known as endometriosis.Endometriosis is considered as a chronic women’s disease. When the...
  • Some females may still wonder what is the best way to cure their disease like endometriosis, and they are eager to know if surgery does harmful to their bodies. The answer is yes, and according to some researches and observations, surgery may lead to some complications like PID. it is very miserable if you get the disease cause it is one of the cause of infertility. So what is the best way to...
  • hauntedgirl25

    Horrific ovulation pain

    1
    Hi....Iv'e been seeing a pain management team at my local Hospital for chronic pelvic/abdo/rib/hip and leg pain. They are going to refer me to see a gyno as I always have terrible ovulation and period pain. My ovulation pain is getting slowly worse and lasting a week up to my period and is as bad as misscariage pain. The pain relief I normally take does nothing,hot water...
  • Kitkat59

    Lupron Depot?

    3
    Hey guys :) I'm going to be getting the Lupron Depot injection soon and was wondering how it's helped your endo? I'm on a Norethridrone birth control right now and I'm not sure sure if it's helped or not (I've been on it for over a month). I had laparoscopic surgery to remove the endo in July of this year and have been experiencing a lot of pelvic pain lately and the drs say that it's probably...
  • armywife15

    Advice for next step

    2
    So I recently finished my 6 month injections of Lupron Depot. The amazing thing is it worked! I was pain free for all 6 months. It has been 2 months since my last injection and I am back in pain. And not only am I in pain, but the pain is more intense than it was before. I am waiting for my doctor appointment to find out what to do now...but I would love insite into what the next step may be. I...
  • I want to, because standard issue pain meds have caused bowel to be partially obstructed. I'm told that CBD:THC oils/tinctures can be healing for gastrointestinal pain and inflammation. My state isn't legal. CO is a world away from me, literally and figuratively.I'm existing, not living, with primal scream pain from choked bowels/bladder. Surgeons won't touch me once they see the Frankenstein...
  • Charixma

    Pain Management Successful?

    6
    Hello All, Just had my very first laparoscopy yesterday with confirmation of endo which we had long suspected. The doctor even said that "your organs were sort of stuck together on the left side." It's such a relief to finally hear that you're not crazy, this was not all in your head and your pain is actually real.However, I still get the sense that, even despite all of this evidence, my pain is...
  • starlord0323

    Endometriosis as a Husband

    2
    Hello everyone. I just joined because my wife and I (26/25yo respectively) have just met with a specialist to try and deal with her endometriosis. We want to get pregnant, but the challenges facing us are heavy. She has had a laproscopy, was on Lupron Depot for 1yr 3months, and even though we have not been trying for a long time to get pregnant, it is seeming like an impossibility. The doctor...
  • SUNSHINE09

    Feeling Discouraged

    1
    Hi!I had my first lap back in 2010 and was diagnosed with stage 1 endometriosis.  Since then I have been on continuous birth control to suppress my periods.  I am currently taking norethindrone and have not had a period in about two years.  However, I feel as if my endo symptoms have gotten progressively worse.  My doctor is convinced that my recent increasing symptoms of nausea, pain,...