Endometriosis Support Group

Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.

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  • hotchocolate

    Spotting, Clotting, and more :(

    Hi everyone,I haven't posted in a very long time!  I had my 2nd surgery for endo in November.  A well-known endo excision specialist did the surgery.  Shortly after, I started to have very short cycles (usually around 21 days more or less).  I also have huge clots that come with it.  Now I'm also having spotting right before and right after.  The endo pain seems to be back a bit, as well....
  • Lisabree

    New to the group

    Hello everyone. I'm new to this group. I am 36 and I have had endometriosis for at least 13 years now. I have 2 natural born sons 14 & 13 and an adopted daughter 7. I had secondary infertility after my boys. I had a laparoscopy just over a year ago and it really didn't help. My OBGYN found it on my uterus, bladder, intestines, ligaments and my ovaries were covered in chocolate cysts. My OBGYN is...
  • Kayannaboo

    Endometriosis and Adenomyosis

    I am 25 and I was told that I have endometriosis and a condition called "adenomyosis". I am not too familiar with the second term but I got some information from my doctor and did some online reading.Does anyone else have this condition? And has anyone been able to conceive since being diagnosed with endometriosis? I look forward to your response.Anna
  • Kiarraraiyne


    This week has been very hard.  I've been told I have severe endometreosis.. which I've known. This is nothing new. But, from the looks of things, the doctor doesn't think that the "clean up surgery," as he calls it, will do much for me.  He says I need to seriously consider a full hysterectomy.  I'm 24.  I've spent my entire life living for other people, and putting my own life on hold...
  • Katie1991

    Waiting for scan

    Hi, my doctor told me today that she thinks I may have endometriosis, which I had figured myself from reading other peoples stories and comparing my symptoms. I am going for a scan next week to check for it. It is an ultra sound scan that I will be getting. When researching online I read that endometriosis may not show up on an ultra sound, is this true or what are peoples experiences,? I am...
  • Prayingforacure

    I wouldn't wish this on anyone

    I was diagnosed with endometriosis about 3 years ago when I was 25. I've always had the typical painful periods. But then it got so bad that I was in the emergency often because I really thought my appendix of gallbladder needed to be removed. And I felt like I would die whenever I would have a bowel movement on my period. Everything has pretty much been localized to my right side. Last year,...
  • reyha

    Flare up

    I was diagnosed at the age of 15, started having symptoms at 13. I have seen the same dr for the most part. I am now 24 years old and have had 4 surgeries and 3 Miscarriages. I have tried every hormone therapy option available to me and have seen specialists outside my city. To make a long story short I refused hormone therapy treatment, hoping that my body just needed a restart and the side...
  • Clairebear1990

    What is wrong with me?

    Hi there,I'm just wanting to introduce myself. Im 27 years old I've had strange periods since I was about 16. At 16 I had stabbing pains in my stomach and I bled through my clothes every 2 weeks or there abouts. At that time, they said I had polycystic ovaries (nothing about my womb) and put me on the pill. Now I've been on this pill for about 5 years with regular, heavy periods but not as bad as...
  • celestempratt

    Period after surgery!

    Hey guys I am new to this group! I had my laparoscopic surgery a little over a week ago. I suffered with cramping all the time not even really just around my period , pain during sex, fatigue and irregular periods    for a while and they of course said endometriosis. I put the surgery off several times out of my own fears and doubts ! After 2 months of bleeding and pain I said ok I have to . I...
  • deleted_user

    uterine crater

    I had my post-op appointment back in april and when we looked at the photos taken during the op there was some weird crater/hole in my outer uterine wall...the doctor i had (who was pretty crappy) said he had never seen that before so ah-well. It's kinda of been annoying me since and just thought i might ask if anyone else has had the same thing?To me it looked like the site of a burst cyst or...
  • Adri326


    Hi. I am new to the group but not to endometriosis. I was diagnosed when i was 25 during my first of three laps. I am now 37. For the last 7 years I've been on various birth control pills to keep the pain and cysts to a minimum. Because of the pill I didn't get my period for 7 years. I am also hypothyroid and maybe have pcos (I failed the ogtt miserably and have had high testosterone at times,...
  • BeachGirl410


    I've never had a UTI before so I'm not sure if this is even what is going on. A little background first, I have endo but don't usually have any daily endo pain or anything. But after I got my first lap in Nov. '11 to remove large chocolate cysts from both ovaries, I get lower back pain much more often. Anyway, for the past few days I've noticed my lower back has really been bothering me,...
  • Mamahartin

    Endometrosis and marriage

    Hi ladies, I am really glad that i found rhis group am hoping that maybe someone somewhere can offer some advice. I am 30 years old, married for 12yrs and have a beautiful 12 year old daughter. I was diagnosed about 2 years ago and told that on top of that i had 2 cists and both tubes blocked. I have wanted nothing more that to give my daughter a sibling and now as a woman and mom i am not able...
  • lucillegem

    it wont stop

    I am fustrated. Tired.Damn nurses, at the hospital is no help! I hate taking birth control pills because the bleeding causes severe cramps and lower back pain.feeling a but helpless atm and bad. Anyone know a good pain killer I can take?
  • SabineD

    My Story

    Hello, I am 19 years old. I was diagnosed with endometriosis in January 2017, though I have been struggling with my periods for about nine years. I started my period when I was ten, and the bleeding has always been quite heavy but the pain, over time, has gotten worse and worse. My pain is at a constant 6/10 and only goes up from there, it is most painful between my hips through my uterus,...