Endometriosis Support Group

Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.

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  • Rochelle43

    Anyone with this?

    2
    I suffered for a long time with bloating and aching in my upper abdomen and lower back. Had tests done, only for all of them to come back clear. Finally it was ruled that I had abdominal strain, and I was given a script for physical therapy. This did help tremendously. However, the lump in my belly button (forgot to mention that) was still there and irritated. (I was told this was a cyst by...
  • Hello All Is it possible to develop endo all of a sudden at age 42? It is not in my immediate family. The only one I know of is the second cousin on my mom's side. I plan on calling my gyno monday but right now Im in constant pain.Any input welcomed :) xoxo
  • I want to, because standard issue pain meds have caused bowel to be partially obstructed. I'm told that CBD:THC oils/tinctures can be healing for gastrointestinal pain and inflammation. My state isn't legal. CO is a world away from me, literally and figuratively.I'm existing, not living, with primal scream pain from choked bowels/bladder. Surgeons won't touch me once they see the Frankenstein...
  • Kitkat59

    Intense pain

    0
    I have a deep family history of Endo and have always had really bad periods since I started when I was 14. I've tried the depo shot and also the nexplanon implant in the past and they both made my periods wayy worse than they already were. In the last six months or so my periods have progressively gotten much worse. In the last two months I've been getting excrutiating cramps and lower back pain...
  • BrittVA

    At A Breaking Point

    4
    I haven't been diagnosed officially yet, but my doctor is recommending the surgery after trying birth control. I have so many questions and feel overwhelmed.Timeline -I've always had unusually painful periods. Like most people, I thought this was normal. 5 days of bleeding and every two hour tampon switch.-November: Bled during intercourse and was in pain.-January: Bled even more during...
  • I'm 19 years old. I had emergency surgery two months ago because my doctor thought my appendix was rupturing. I woke up later to find out it was chronic pelvic pain due to Endometriosis, (which I had never heard of.) I was told by my doctor that the pain would most likely never go away until I had a hysterectomy. I was also told that there may be a chance that I would not be able to have kids. I...
  • Hi,I am 25 and have suffered from chronic pelvic pain for the last three years. About two years ago I had surgery to see if my doctor could give me a diagnosis. Unfortunately and I guess also fortunately, he did not see any endometrium implants in my pelvic region, however I still suffer from chronic pain and all the wonderful symptoms of endometriosis. The lack of a diagnosis while still having...
  • I just currently had my second laproscopic surgery on May 27th. I have been on every birth control out there including the lupron shot. They put in the merina iud for the second time and once again my body is throwing out all kinds of horrible side effects. The doctors demand that I need to be on BC but my body says otherwise. What should I do as my next step? I am at a total loss. I was...
  • Hello ladies!Can anyone recommend an excision specialist in NJ? I had my first laparoscopic surgery 2 years ago. At that time an endometrioma was removed, and other areas of endo were treated. However, the pain is back, and I have developed another endometrioma. Does anyone have Dr recommendations in NJ? Central NJ would be great but am willing to travel to NYC or Philly if needed. Any advice or...
  • epicgurl

    So much pain

    3
    Hi everyone I am scheduled for lap.surgery on the 27th and I am in so much pain right now I don't know what to do. I have a seperated complex cyst and my Dr believes I have endometriosis. I feel so alone and scared no one around be knows how much pain I am really in.
  • ashleyeliza314

    Pain Management

    4
    I was diagnosed with Endo about 5 or 6 years ago. I've had three laparoscopies with laser and have found that being on Nexplanon birth control has helped with my pain. However, I've been recently informed that I have to put ff another surgery as long as I can and I need some help with pain management techniques. I do plan to start Lupron in September after my wedding. I have a script for Naproxen...
  • Hi, I am 23 years old and have been trying to figure out what on earth my body is up to from the age of 15.I have had painful and heavy periods from about the age of 15 (I started at 13). The pain has been so bad at times that I have blacked out and it has caused me to vomit. Not every period is this bad but more often than not I dread it.I was put on the pill when I was 15 and this did help a...
  • All the women on my moms side of the family had endometriosis and had to get hysterectomies because of it and I think I may have it too. I've always had really painful periods but I got the Nexplanon birth control implant about six months ago and my periods have progressively gotten much worse to where the pms and periods themselves are almost unbearable. I take 600-1200 ibuprofen and it...
  • ronniliz

    Help

    5
    I didn't really think much of my "spotting" because I'm under a lot of stress. I'm on continuous birth control and not supposed to have a period I've now been bleeding for almost 2 weeks and I'm really not sure what to do? Let it take its course or call the dr? Help please!!
  • My name is Charlotte and I have been battling these conditions for 4 years now, I have had them for much longer. I deal with 4th stage Endometriosis, IC and IBS/Outlet obstruction conditions. This disease can make us feel powerless because it can consume us sometimes and takes so much from us. It has taken so much from me as well. I have had eight surgery's, receive weekly bladder instillation's...