Endometriosis Support Group

Endometriosis is a common medical condition where the tissue lining the uterus is found outside of the uterus, typically affecting other organs in the pelvis. The condition can lead to serious health problems, primarily pain and infertility. A major symptom of endometriosis is pain, mostly in the lower abdomen, lower back, and pelvic area.

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  • Hi! My name is Jill, and I was diagnosed after a lap done when I was 18(22now). I then was found with stage 2 endo. At that age I was well unaware of my forever battle with my chronic illness. It affected everything. My life, my job, my relationship, my heart. It grew back shortly after my 1st surgery and came back viscously and stronger then ever. I'm strong. I let the pain hurt, but emotionally...
  • jess55

    Just need answers...

    Hi I am 20 years old I'm pretty much at a loss with myself. I don't know what to do.. so I'm seeking out someone to talk to.. I've been reading a lot about endo stories and none seem to match mine... so I thought I'd post and see if someone may be able to give me advise or answers. I apologize if this is long.. I haven't spilled out my feelings about this with anyone and I've only talked to...
  • Hello everyone,My doctors think that I might have endometrosis...and I am not sure how to proceed.  I'm very afraid of what this means for my life and my relationships.  My symptoms started back in July with stabbing pain in/near my left ovary and abnormal bleeding (black/brown discharge).  My mom rushed me to the emergency room where I was diagnosed with an ovarian cyst.  However, when I...
  • starlord0323

    Endometriosis as a Husband

    Hello everyone. I just joined because my wife and I (26/25yo respectively) have just met with a specialist to try and deal with her endometriosis. We want to get pregnant, but the challenges facing us are heavy. She has had a laproscopy, was on Lupron Depot for 1yr 3months, and even though we have not been trying for a long time to get pregnant, it is seeming like an impossibility. The doctor...
  • ssf93

    Endo pain/dysmenorrhea/sex

    Hi! I am 23 and I have had diagnosed Endo since about 2012- but been treated for it since about 2011, since I was 18, and I think had it since starting menstruating at 11 years old. I started with birth control, then moved to an IUD (no periods!) (Mirena) and a laparoscopy in December 2013, which helped greatly (I want to say I was Stage 3?). Adhesions returned, of course, and I had a robotic...
  • Kitkat59

    Lupron Depot?

    Hey guys :) I'm going to be getting the Lupron Depot injection soon and was wondering how it's helped your endo? I'm on a Norethridrone birth control right now and I'm not sure sure if it's helped or not (I've been on it for over a month). I had laparoscopic surgery to remove the endo in July of this year and have been experiencing a lot of pelvic pain lately and the drs say that it's probably...
  • nomorepain

    Seeking support and understanding

    Three years ago I had a miscarriage which led to excruciating periods which led to severe endo which led to kidney blockages and stents and then a total hysterectomy which has now turned into abnormal vaginal bleeding and nodules and another kidney blockage. I m now in the hospital after another stent placement and seriously trying not to have a major nervous breakdown. I need support. I need to...
  • kchandler83

    Advice needed!

    Hi ladies! I need some advice. I had my 1st laparoscopy almost 10 years ago when I was 23 years old. At the time, they did find endo but was only a stage 1. Over the past few years I was feeling pretty good and my symptoms seemed to be under control as I was on birth control. I got off the pill 2 years ago and my periods were getting worse each month. In January  (this year), I started getting...
  • YouGonnaEatThat

    Does this ever end?

    My first period lasted 3 months and was super heavy and super painful at the age of 12. I was then diagnosed with Anemia. They put me on birth control to get in under control and that was that. While it lightened my period drastically I thought that horrible cramping and clotting was the normal when it came to periods. That was until recently. I don't remember much about sex when I first became...
  • kb9125

    Forgo treatment?

    Hello all! Almost-25 year old here. Have been coping with suspected endo for nearly 10 years. Appointment with the OBGYN is still a year away. I have yet to be diagnosed, though have seen many doctors over the course of the last decade. Like many others, the long and short of it is that I have been repeatedly dismissed and misdiagnosed..."Kidney stones, uti, *womanhood*, etc." I am too...
  • juleshxx19

    advice please

    Hi everyone, I am 20 years old now and have had extremely painful periods since I first started my cycle at 12.  It was so bad I would miss school almost every month, vomit, need pain relief and constant heating pads.  I went on birth control as soon as I turned 18, and my painful periods went away.  I am only now learning that my mom has endometriosis and her decription of it and the info...
  • Sega117


    Hello there. It's 2:30am where I am. My house is quiet, save for my other half snoring next to me and my dog whimpering softly at my feet. I can't sleep, no matter how long I lay here with my eyes closed and counting sheep. I was diagnosed with endometriosis 2 years ago. Recently, after having a few doctors unwilling to help, I switched to a new OBGYN. In an effort to try to help with my...
  • zoeluv

    Extreme PMS Symptoms for 2 weeks prior

    HI I am new to the group been diagonised with endo 2 years ago, w surgery and countless years of infertility.  My doctor removed the endo along w fibriods. After a long recovery, I know I feel it coming back the pain my left pelvic region is constant and keeping me up at night. My husband and family as great as they are don't really get it. I've been feeling so off every 2 weeks before my period...
  • Charixma

    Pain Management Successful?

    Hello All, Just had my very first laparoscopy yesterday with confirmation of endo which we had long suspected. The doctor even said that "your organs were sort of stuck together on the left side." It's such a relief to finally hear that you're not crazy, this was not all in your head and your pain is actually real.However, I still get the sense that, even despite all of this evidence, my pain is...
  • Perseveres

    Anyone Try Gerson Therapy?

    I'm curious about it but have been disappointed so many times that I just don't know if it would be worth the time and money to do it. Also, thanks to Endo/IBS, I can't consume much of the foods used in juicing without suffering horrific pain.Wondering if you know any ladies whom have had success with this.http://gerson.org/gerpress/the-gerson-therapy/