DementedDoll

DementedDoll

Status: Not on often sorry guys. Leave a message and I'll get back to you.

Mood: Ok
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About Me

Age: 36
Gender: Female

Hello all, I came here to find some people to talk to about joint hypermobility syndrome, misophonia, and autonomic nervous system disorders but those groups are basically inactive. I also have pretty severe anxiety (see my journal for details) and persistent depression which generally manifests as disinterest and lack of motivation. For those who are interested, JHS is a connective tissue disorder wherein all connective tissues in the body are too stretchy, primarily affecting the ligaments that hold your bones together. This results in chronic pain (just sitting, standing or laying down hurt), causing poor sleep, causing fatigue, which results in excess adrenaline (to keep going) which results in more poor sleep etc. JHS also commonly causes slow healing, abnormal scarring, and poor/no effects from medication and anesthetics. The constant forced adrenaline results in various manifestations of autonomic nervous system disorders, essentially the body is so used to pushing so hard to keep going that it always overreacts. This, combined with stretchy blood vessels results in dizziness and racing heart rate whenever I move, because the blood vessels allow blood to displace from my upper body(via gravity) when I move/stand and my heart has to work insanely hard to try and get it back up to my head, but then it overworks because of the adrenaline. Misophonia is related to this as well. It is thought to be caused by too many connections between the autonomic nervous system and the limbic system(memory/emotions), which results in everyday sounds triggering a fight or flight response in the body. How you would feel if your mother's assaulter was placed in front of you is how I feel when I hear normal sounds(fork scraping a plate, chewing with mouth open, open mouth breathing, beeping) - absolute rage and the need to destroy it or run away. All of these conditions are rare, undiagnosed and underdiagnosed because most doctors don't know about them and/or don't understand them so they just hear our stories as whiny exaggeration and brush us off. All of this can also be linked to anxiety and depression, and together they have turned me into an antisocial hermit.

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