Neurocardiogenic Syncope Community Group

For anyone suffering with an autonomic dysfunction like NCS, POTS, or other vasovagal syncope and would like to connect to others and discuss, share, and care about one another as we learn to cope with the many challenges of this disease. And remember that DailyStrength is designed to be completely anonymous. The only information that is required is for you to choose a...

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POTS or no POTS?

DementedDoll
DementedDoll

I've never been diagnosed with anything except anxiety, but I feel like I have pots. I just did a little test, I was resting at 77bpm, stood up, went up to 128bpm, back down to 104, and then slowly climbing (to 108) again for 2 minutes (I had to sit down after 2m), and 2 minutes after I sat down I was 77bpm again. Do I have POTS or not? Because it's supposed to go up 30bpm but at one point it was 104 (only 27bpm higher than resting), and usually it doesn't spike so high, sometimes only 103 on standing and then it plays around up to 110 or so.

DementedDoll
DementedDoll
Yeah I mean I can feel like a big dizzy rush when it goes up and I can feel when it goes down. I do have anxiety which affects my heart rate but I have been checking my pulse when I'm not anxious. Yesterday I brought groceries in from the car and it was at 155bpm =/
Group Founderfrustratedpoet0001
frustratedpoet0001
i wish i had an answer, I have similar symptoms. Hang in there and let us know how you are doing?
DementedDoll
DementedDoll
Well, I had an internist check it out. Unfortunately I was very anxious during the whole appointment so my heart rate and bp were crazy to begin with, so they didn't show much change when I stood up. At this point, no one has any idea why I get so dizzy, and my doctor's advice is "well, move slower". Thanks doc >>
Group Founderfrustratedpoet0001
frustratedpoet0001
that doesn't help much does it. I had a doctor tell me to stop my feet and shake my legs before I stand up
DementedDoll
DementedDoll
No, doctors have never been all that helpful in my lifetime. For me the worst bit is if I bend down or crouch and then stand up, the head rush seems insanely intense. Idk if that's related or not, but currently I'm just going to put up with it. I have bigger fish to fry on the medical front at the moment, just started physio for hEDS/JHS. I've got loads of medical issues but I only have the mental and physical energy to tackle one at a time.
Group Founderfrustratedpoet0001
frustratedpoet0001
sorry to hear that, with me I just get dizzy when I stand up after bending down or crouching. It usually passes quickly but I fear fainting a lot
DementedDoll
DementedDoll
It can take a few minutes to pass for me. After realising it wasn't normal, I started noticing some things I do to counteract it. I almost always hold on to something when I stand up. And I have a habit of holding my breath when I change elevation, especially when I climb stairs, I think it keeps the blood pressure higher in my head or something. For the moment this works fine, since I can't really be active yet due to my other issues. But still it's a mystery and one day I intend to solve it!
Group Founderfrustratedpoet0001
frustratedpoet0001
The worst is the tunnel vision, but I don't get that much now. It is very scare until passes. Other than the dizziness I feel good now. my only other issue is now controlled by medication without side effect.