Hypermobile Syndrome Support Group

Hypermobile syndrome is characterized by the ability to move a joint beyond normal range. People with hypermobility syndrome may develop other conditions caused by their lax connective tissues. These conditions include Gastroesophageal Reflux Disease (GERD), Irritable Bowel Syndrome (IBS), varicose veins, flat feet, scoliosis, sprains, tendonitis, and bursitis.

138 Members

192 Posts

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New Post

Ehlers Danlos genetics?

Posted by: des10ed2b

Posted: 03/06/2025

0

Has anyone taken the time to do the ehlers Danlos genetic testing now that it is available? If so, what was your... READ MORE
my hands and arms are so sore

Posted by: cottontail

Posted: 04/05/2021

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i know physio will say that i have been doing too much i.e drawing, knitting, exercise plus doing a lot more typing at... READ MORE
Desperate for some advice?!

Posted by: 0002mh

Last Reply: 0002mh 08/29/2018

2

Hi, I haven't been officially diagnosed with Hypermobility. I have seen the doctor on several occasions about... READ MORE
Newbie

Posted by: Suze85

Last Reply: DementedDoll 08/07/2018

1

Hi - I just joined but it looks like this group isn't very active. If anyone reads this - I hope you're doing ok.
Struggling with injury and secondary injuries

Posted by: MKivig

Last Reply: DementedDoll 07/11/2018

1

Hi, I'm new to this group. I was diagnosed with HMS some years back, though not officially through the system. I'm... READ MORE
Hello i am new to support groups

Posted by: Dece

Last Reply: DementedDoll 07/11/2018

1

I have sufferered with my knees dislocateing for 30 years and have never been diagnosed with hypermobility. i have all... READ MORE
New member!

Posted by: DementedDoll

Posted: 07/11/2018

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Hey everyone, new member here. I'm here to find someone or a few people to talk to who can understand how I actually... READ MORE
Help needed

Posted by: 0002mh

Posted: 06/18/2018

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Please can you look at my recent post. Any advice welcome.
Doctor not listening

Posted by: Clf200278

Last Reply: Dece 06/08/2018

1

Hi my name is Charlie and I was diagnosed with JHS in December of 2016 and was sent to Alder Hey children's hospital in... READ MORE
Newly diagnosed

Posted by: alysin

Last Reply: Avangelien 02/06/2018

1

hi there, I am 19 years old and recently diagnosed with hypermobility syndrome after suffering from 5 years of what... READ MORE
New to this

Posted by: Avangelien

Posted: 02/06/2018

0

Hi, I like to be called Avi, or Avangelien. I have never done anything like this before, but I was diagnosed with... READ MORE
16 year old with hypermobility

Posted by: emma.hanson

Last Reply: alysin 12/12/2017

3

i'm new to this so i thought i would share my story with everyone. My name is Emma and when i was about 5 to 6 years... READ MORE
where are you from,how old when diagnosed

Posted by: sandiz

Posted: 06/26/2017

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Hello, I am 50 yrs old and just diagnosed in May. I have suffered for years with IBS, spraining and then breaking my... READ MORE
Recently diagnosed

Posted by: cindymulkey

Last Reply: sandiz 06/26/2017

2

I was diagnosed in April with BJHS and autonomic dysreflexia along with shoulder impingement and tendonitis. I have... READ MORE
New

Posted by: CrackinCrazy

Last Reply: Eagle 05/11/2017

2

Ok So first time on here,To be honest feeling really lonely at the moment i dont have a supportive family and i live on... READ MORE