
Ehlers-Danlos Syndrome Support Group
Ehlers-Danlos syndrome is a group of rare genetic disorders caused by a defect in collagen synthesis. Depending on the individual mutation, the severity of the disease can vary from mild to life-threatening. Common symptoms are unstable, flexible joints with a tendency to dislocate and subluxate, and elastic, fragile, soft skin that easily forms welts and scars.
Skin & Hair
Ehlers-Danlos Syndrome Support Group

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Hey everyone i am new here. Recently i found out exactly what EDS really was, even though i was diagnosed when i was a... READ MORE
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I've just received my EDS diagnosis type III and I'm wondering if it could be Vascular. I've had more veins show up on... READ MORE
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I have visible veins behind my knees and I’m very sedentary so I don’t know if that’s why. Then I have visible... READ MORE
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I have had stomach problems all of my life. i was diagnosed with EDS about 4 years ago. I was wondering if any of my... READ MORE
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Hey everyone! :-)My name is Olivia and I'm new here. First of all please excuse my English, I come from Germany and... READ MORE
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Hi I'm new to this group. So forgive the long text. My daughter is 19 and was diagnosed with EDS type 3 a few years... READ MORE
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Hello to all of my fellow EDS patients/parents. I was recently diagnosed with EDS after 13 years of no answers. I would... READ MORE
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Hi everyone, I am looking for ways to help a loved one with EDS. I know she is in a lot of pain, but whenever I ask... READ MORE
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I'm currently using ibuprofen for my pain, but it hasn't been working very well. Does anyone know any pain medication... READ MORE
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I'm actually pretty happy that its been about a year since I've been to the hospital for stitches. I'm always getting... READ MORE
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Hi I will try to be brief, I was diagnosed with vEDS, 2 years ago, and then even my life was always in hospital and... READ MORE
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I really dread going in for my annual echo. Every year I go in, and it feels like my ribs are going to break from the... READ MORE
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I've been playing piano for ten years and recently I've been more and more discouraged by the finger pain (and wrist... READ MORE
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My daughter, age 6, was just diagnosed with the hypermobility type of EDS. I was wondering if anyone here has a child... READ MORE
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My daughter has EDS. She also has chronic kidney stones and passes about one every 6 weeks. She has low citrate in her... READ MORE