Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
JT1973
First off, thanks to all of you for your support on my other post "Depressed/Scared". One of the things I'm learning about this disease is that it really has no rhyme or reason and that sometimes flare ups just happen. It's frustrating, but I know I have to calm down and breathe through it like some of you advised.
I went to my opthomalogist today because I was having some visual symptoms and wanted to see if my paps are returning. Good news is that he said my eyes look great! No swelling, no bleeding. All's well on that front. He explained that with rises in pressure (like I know I've been experiencing this week), I can have visual symptoms. But, that doesn't necessarily mean that there is swelling. These things can come and go. Phew!
I go to see my neuro next Friday, so we'll see what happens. I'm feeling better today actually and my flare up did coincide with both my period and a change in weather here. (Cold and rainy). So, maybe my pressure is related to that. We'll see what the doctor says next week. Maybe since my vision is not in immediate jeopardy and I am not having painful headaches we'll just stay the course and see what happens. Either way, I will remain strong, be honest with him and be open to his suggestions. And then I'll come here and cry to all of you if I need to :)
Thanks so much for your continued support. I will keep you updated!
I went to my opthomalogist today because I was having some visual symptoms and wanted to see if my paps are returning. Good news is that he said my eyes look great! No swelling, no bleeding. All's well on that front. He explained that with rises in pressure (like I know I've been experiencing this week), I can have visual symptoms. But, that doesn't necessarily mean that there is swelling. These things can come and go. Phew!
I go to see my neuro next Friday, so we'll see what happens. I'm feeling better today actually and my flare up did coincide with both my period and a change in weather here. (Cold and rainy). So, maybe my pressure is related to that. We'll see what the doctor says next week. Maybe since my vision is not in immediate jeopardy and I am not having painful headaches we'll just stay the course and see what happens. Either way, I will remain strong, be honest with him and be open to his suggestions. And then I'll come here and cry to all of you if I need to :)
Thanks so much for your continued support. I will keep you updated!
deleted_user
Well ...that's good news ! I can sort of relate . I went to the doc because I am seeing some distortion but he said my eyes are holding steady ...so it is confusing . Why distortions now if my eyes are no worse ? Doesn't make sense . Anyway , I hope your appointment goes well . Keep us posted .
deleted_user
I wish we had more info ...for three days I will feel great and then BAM brick wall and I feel so exhausted and spent ....too much unknown
deleted_user
so glad you are at least a little better! Those hopeless depressing moments are tough. That's why we have each other, I swear this place and everyone here is the only reason why I haven't went completely insane! So glad your paps are not back!! woohoo. You are doing everything you can, it's unfortunately a one day at a time process.
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