mseaton
Status: 111 here today. Too hot!
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- I am discovering that when I sleep I am tensing up until my hands are clentched. I wake up in the night miserable and in the morning so stiff and sore. I have difficulty walking when I first get up,joints and muscles. I find when I sit and try to...
- I know we have discussed before how cold weather really affects many of us. I recently tried to explain how my tempature drops and my hands, feet and nose get icy cold. My doc said this was NOT sjogrens. He checked my thyroid which has been checked...
- I have been able to keep a fairly good attitude about having SS until now. I had decided to think positive, keep active as much as possible and just work with the symptoms. To just dea with it as others have worse conditionsl. My husband is bitter...
- Has anyone tried a gluten free diet? I may have asked before but can't remember..fog...anyway I am trying it as I have read that many ss sufferers have a gluten intolerance and symptoms get much better with out gluten. Also do many of you have...
- Oh please do not tell me this is another symptom and possibility with SJS. I have not heard this before. I fear there is no end to this syndrome? Can someone explain this aspect of the stones to me.
- I am so uncomfortable and am wondering if anyone is taking celebrex? My doc offered it but I am leary of most meds. I have weaned off hydrochlor and actually hurt less. Can too much of it buid up in your system? I am going to doc on Thurs and all in...
- My joints still ache off and on but my muscles are just so sore and achy. Warm showers help and swimming soothes. Maybe the stretching in the water. I seem to tense up all the time as if I am fighting the discmfort which seems to make it worse. I...
- I am wondering if anyone has asked their doctors if there is any way to determine if their sjs will continue to worsen or if it will level out at some point. Does there seem to be a pattern? I know some of my symptoms come and go while others lessen...
- I'm not sure if I asked this before but I am wondering about healing on this med? I bruise more easily but not horrible but I have noticed that I heal so slowly. I had a bicyce wreck last Aug. and still have scar spots. It took many weeks for the...
- I am so interested about the climate and sjs. Tom said humid climates are best not dry. I can't tolerate the dampness of seattle or Alaska but it is a cool damp and I can't tolerate the cold at all. I feel better in Eastern Washington during the...
- I was wondering if there has been a study on what part of the world or climate that has more auto-immune disorders? I know Alaska, parts of Canada and the Pacific Northwest has much a higher percentive of breast cancer. It has been related to the...
- I know this sounds strange but every so often, not all the time, I have for a lack of a better discription hot spots in my muscles. My thighs, upper arms seem to be the worst. I wouldn't call it a spasm because it is more constant. It just feels...
- I am wondering, and I tread lightly here, has anyone tried marijuana for pain? I have never used it but have heard many people with chrones and RA are having good results with medical marijuana. I refuse to take any more pain pills as I fear the...
- I am wondering how many individuals suffer from intestinal pain and spasms. My is pretty much constant but I seems to have developed a tolerance for it most of the time. I also have symptoms of IBS but that omes and goes. They thought I had chrones...
- I have asked several doctors about this but they say they just don't know. If I get cold I can't get warm at times and my body tempature will drop as low as 95 degrees. I end up white white like I am dead and I have to wrap up and wait. It can last...