Sjogren's Syndrome Support Group

Sjogren's syndrome is an autoimmune disorder in which immune cells attack and destroy the exocrine glands that produce tears and saliva. It also associated with rheumatic disorders such as rheumatoid arthritis, and it is rheumatoid factor positive in 90 percent of cases.

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mseaton 12/09/2009

I am wondering how many individuals suffer from intestinal pain and spasms. My is pretty much constant but I seems to have developed a tolerance for it most of the time. I also have symptoms of IBS but that omes and goes. They thought I had chrones at first but the biopsies were negative. I know nuts and raw carrots can worsen it but nothing eliminates it.

dadsgirl1 12/09/2009

Yes, my intestinal area is rumbling all the time, but have not really discussed it with my doctor. Just mentioned it, but I am planning to discuss further when I see her in January. I think I'll do some searches on IBS and chrones today.

Have a good day!

Tom59 12/09/2009

SjS can cause serious digestive issues without saliva to help break down food you need to add in a probiotics or a yogurt loaded with enzymes.
Personally , I use pineapple juice after every meal. I've done this for quite awhile. I had all kinds of odd stomach and digestive noises. I still do , but they are much better now.

Being regular is really important and getting your food fully broken down makes it easier on the system. It's just another thing to deal with daily...
If you need to watch calories then read labels because a lot of these things are loaded with them. Simple carbs.....

http://www.aligngi.com/probiotic?utm_source=google&utm_medium=cpc&utm_term=probiotics&utm_campaign=Unbranded&247SEM

http://yoplait.com/health_cultures.aspx?WT.mc_id=paid_search_300400_636117&WT.srch=1

mseaton 12/09/2009

Thanks for the reminder. I was faithful with probotics and it did help. we moved and I lost track of many things and I for got how helpful they were. I will get more today. I can't remember if it stopped the spasms or what I just remember they did do something I was impressed with.

Allisonc79 12/09/2009

I know I get intestinal pain often. When I go to the doctor and they feel on my stomach it always hurts. I do have gastritis, and acid reflux. Testing always comes out normal though. I chalk it up to good old inflammation going on.

deleted_user 12/11/2009

Many people with sjogren's also have celiac's. This can explain intestinal pain. You might want to have Dr. do a simple blood test to check.

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