chicagomomof3
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- good news is I'm one year post stem cell transplant! Yay! Bad news is my ferritin levels are over 4500 which is iron overload. Dr wants to do therapeutic phlebotomy but says I'd need another central line. Ugh. Anyone else had this? Can I do it...
- Hi all,Quick update: still in remission from first relapse but getting consolidation next week. SCT scheduled for April 19. Abdominal CT showed enlarged liver and I have some slight pain where liver is. Very mild. Also my liver enzyms are high. My...
- Still at Loyola. Waiting for counts to recover. Sounds like I have three donors that the lab is looking at. Target date is 3rd week of March. I'm really worried about the side effects of such high intensity conditioning chemo. I'm not getting...
- Hi friends,I'm actually day 15 of induction and things are going ok. Preliminary results from day 14 bmb look like remission but I'm not getting excited until finals roll in on Monday or Tuesday. Still fighting pneumonia but it's getting better....
- Ok all you amazing SCT survivors out there. Let me have it. The good, the bad, the ugly. If I can find a donor, what can I expect from a SCT? What's conditioning chemo and radiation like? Worse than induction? When did you feel the worst? How can I...
- So my Drs are giving me Mitoxantrone 5 days over 30 minAnd Etoposide 5 days over an hour. Anyone else had these? Better or worse than cytatabine?
- Yep. Sure am. Got a fancy ambulance ride and everything. I'll post more later. So tired. Please pray for a donor match, when thy checked in spring (protocol for trial I was on) I had no donors at aL. I have a rare genetic mutation apparently. So...
- So after an excruciating long weekend with no answers....we still have no answers! Pathologist said there are 4% blasts but he can't tell if it's in blood or marrow because sample isn't great. Pathologist thinks it's blood. However, my question is...
- Help. I'm panicking. I've had some illness (a cold, cough, pink eye, Sore throat on and off) for almost a month. My husband had same thing but his finally clears up after 3-4 weeks. Today I went to my primary care dr to see about this sore throat....
- Hey all!I haven't been as active on here because honestly, it caused me lots of anxiety. But you all remain in my prayers and I think of you often. I still check in once in awhile! I'm officially 1 year in remission today! I know it's not a...
- Just throwing this out there. Labs looked good today. Have been tired and cold last few days and my son has a cold which I think I'm fighting off. My numbers were good today but was concerned to see the following:Neutrophils % auto: 75.1%...
- Probably a silly question but since my numbers are good, I would likely get to a point (or be there now) where numbers stop rising and stabilize right? Like my wbc dropped .3 today and I'm assuming that's fine. Basically was the same. Hgb only rose...
- Hi all,Anxiety has caught up with me and is becoming a bit overwhelming at times. I'm starting to have more and more panic attacks over relapse and everything associated with that. My doctor has suggested that I take a break from this support group....
- Hi all,Here to tell you I just had my first post treatment appointment (3 months out from end of treatment) and all is well. Hemoglobin is 13, wbc is 7, ANC is 5 and platelets are 105. Platelets were 93 back in May so dr wants me rechecked in 6...
- Has anyone had experience needing new vaccines? I have small children (age 1,3,5) starting preschool and kindergarten and my hem/onc said I may need updated vaccines for measles, chicken pox etc. she said the chemo could have knocked all previous...