The Hydrocephalus Awareness Group Community Group

This is a group where we are trying to raise awareness of this chronic disease. This disease effects nearly 20% of the population...and is a very serious illness that should not be taken lightly.

8 Members

28 Posts

0 Online

New Post

New Members Board!

Posted by: deleted_user

Last Reply: Aja 07/21/2017

26

Welcome to the Hydrocephalus Awareness Group! Please write who you are and why you joined....and anything else you may... READ MORE
my 10km mud run for Neurocare

Posted by: liamw100

Posted: 08/20/2015

0

HiI am taking part in a 10km mud run in October for a charity called Neurocare.It is a 10km obstacle course in the... READ MORE
Hydrocephalus and missing cerebellum

Posted by: deleted_user

Last Reply: deleted_user 04/16/2012

7

Hi to everyone, I'm new here and not sure if i have come to the right place but my unborn baby is missing his... READ MORE
wakefield & district spina bifida & hydroc

Posted by: deleted_user

Posted: 11/07/2011

0

Hi I'm samantha (vice chair) of the wakefield & district spina bifida & hydrocephalus support group.we are urgently... READ MORE
headaches

Posted by: deleted_user

Last Reply: deleted_user 08/30/2011

3

i have a extremely bad headache and im finding it difficult to stay awake. i havent had any other symptoms yet, and... READ MORE
Here We Go Again

Posted by: deleted_user

Last Reply: deleted_user 08/30/2011

3

I just found out that my shunt has a blockage. :( Great here we go again.
Hydrocephalus from birth....

Posted by: deleted_user

Last Reply: deleted_user 03/11/2010

1

Hello all, I am really interesting in being in contact with anyone who has had Hydrocephalus from birth, or who is the... READ MORE
Hey everyone, 18 year old male here.

Posted by: deleted_user

Last Reply: deleted_user 03/02/2010

4

Hey guys, I just turned 18 this month and I had a minor case of hydrocephalus that left me with a large skull. Its... READ MORE
What do you do???

Posted by: deleted_user

Last Reply: deleted_user 02/12/2010

1

What do you do when, 2 people who you love very much, are fighting for there lives??? I am going to lose 1 person, and... READ MORE
Think globally, act locally

Posted by: deleted_user

Posted: 06/16/2009

0

I found a community based website for my home town and posted a small free ad directing anyone who needs support with... READ MORE
Has this ever happened to you

Posted by: deleted_user

Last Reply: deleted_user 03/15/2009

9

Anytime I take medicine for my sinus I feel like my head is sinking in at the temples. I have never been told this but... READ MORE
out grow hydro?

Posted by: deleted_user

Last Reply: deleted_user 02/02/2009

1

my last neuro appt. he told me that i don't have hydro, but ive got non-communicating hydro, so i don't see how. i have... READ MORE
Endoscopic Third Ventriculosomy for Noncomunicativ

Posted by: deleted_user

Last Reply: deleted_user 01/17/2009

1

Hi,I'm new to this board. On Dec. 10th, 2008 I was diagnosed with a benign tumor which is causing me to have... READ MORE
hydrocephalus: a blessing in disguise?

Posted by: deleted_user

Last Reply: deleted_user 12/26/2008

3

i kept thinking for a long time, that i was born with a curse. and that i should go to hell because i was not made... READ MORE
Is there hope?

Posted by: deleted_user

Last Reply: deleted_user 11/25/2008

3

Is there hope after years of csf putting pressure on ones brain one can ever get their full brain function back? Or is... READ MORE