Acute Myelogenous Leukemia (AML) Support Group
Acute myelogenous leukemia (AML), also known as acute myeloid leukemia, is a cancer of the myeloid line of blood cells. Patients with AML usually present with symptoms such as fatigue, bleeding, infection, prompting medical attention. An abnormal blood test reading will then result in further testing in a hospital with a hematologist to determine AML.
I had my three month post remission labs and clinic visit today and the results could not have been better-praise God!!! My platelets are 99-higher than they have been since DX on March 22 2013-they were 98. My WBC is 4.6. ANC 3.2 and HCT 38!!!!! I cried like a baby. This has been the hardest 13 months of my life and I would not wish AML on anyone. But if I'm being completely honest, I would not change what happened to me. The most important thing to me, my relationship with God, has improved and grown so much. I have learned to truly trust and surrender to HIM. I do not presume to know or understand God's will but I do trust it. My relationship and love within my family, friends, neighbors and co-workers has grown exponentially. My appreciation for life and mankind has grown. I look at life so differently. Instead of planning my retirement or my next vacation, I try to focus on each day and the gift from God that life truly is. The beautiful spring flowers and how wonderful they smell, the sunrise and sunset, the puppies my goldendoodle Marley had, listening to my daughters tell me the Bible story they just read. I could go on and I know I sound pretty mushy but this is the new me reborn. I spent the entire Easter service yesterday sobbing like a baby. Utterly overwhelmed by the thought that the almighty God who created the universe, sent HIS son to die for my sins. That HE cares for ME. He knows the number of the days of my life and I have accepted that fact. How this path ends I have no idea. If I relapse, I will fight to the end-God willing. I beg God to allow me to raise my daughters but I know they are so much more prepared than they were a year ago if this is not to be. I absolutely could not have made it through this year without this amazing group. My heart still aches when I think about Andrea and Ed. When I log on and see their smiling faces on my friend list. I miss them everyday. All of you have inspired, uplifted, calmed and encouraged me more than you will ever know and I am forever grateful. I pray daily for all of you in your different roles (patient, caregiver or mourning loved one) and at your different points on this journey. Most of all, I thank Dave Brown for rescuing me from another website and directing me over here. I look forward to his weekly Bible thoughts ministry and treasure his faith and commitment to the Lord. All I want to do is pay it forward and help others through this journey in any way possible as I have been helped.
May God Richly Bless You All,
Julie
May God Richly Bless You All,
Julie
Julie
Hugs and prayers.
Karen
Lou
God Bless you,
Dids
After a month of concern over my last CBC, I am so grateful to God for great labs results today!!!
30 Months post DX-Chemo only
22 Months since last Consolidation
WBC- 4.7 up from 3.6
HCT 40.1 up from 36.3
Platelets 120 up from 120
ANC 2.7 up from 1.8
Last months labs were done after four weeks of travel to include three plus weeks in 10 different European countries. Although I felt very healthy throughout my travels, my family did use almost every mode of transportation while abroad to include several sub-way systems (Rome and Paris) dripping with fungus, bacteria and I'm sure Ebola :-). My med team is convinced that the drop last month was due to this exposure.
I hope this example may help others who ride/will ride the CBC rollercoaster. Thank you ALL for your continued prayers and the blessing to pray for you!
Blessings,
Julie
Lou
Karen
Muah!!!
My love to your precious family.....
Hugs.....Sandra
WBC 3.9
ANC 2.3
HCT 40.7
and drum roll please. ... Platelets 149 almost normal
We discussed the big mile stone coming up in Nov, two years post treatment. I realize nothing magical happens on that day; nevertheless, I am very excited to get there. At that point, I move to labs every three months and clinic every six. My med team is very conservative and monitors patience very closely.
Please pray for a negative PCR test for inversion 16
You are all in my daily prayers.
Blessings
Julie
Lou