Acute Myelogenous Leukemia (AML) Support Group

Acute myelogenous leukemia (AML), also known as acute myeloid leukemia, is a cancer of the myeloid line of blood cells. Patients with AML usually present with symptoms such as fatigue, bleeding, infection, prompting medical attention. An abnormal blood test reading will then result in further testing in a hospital with a hematologist to determine AML.

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  • rach919

    Mom with AML

    Hi all. This is my first post, I just joined this group today. My mom was diagnosed with AML Flt3 on July 22 at the age of 64. She immediately began treatment with leukapheresis followed by 7+3 induction and midostaurin on days 8-21. She also had to have intrathecal chemo twice weekly for three weeks. Her 14 day biopsy showed only 2% blasts. She had some complications and it took longer than...
  • sherrijohnstonwheatl


    My husband was recently diagnosed with AML and had one full week of 24-7 chemo. We have been waiting for a week now since he finished his first round of chemo. Tomorrow is his follow up bone marrow biopsy and we are on pins and needles. I know we are new to this disease and just at the beginning of his treatment but I thought joining this group would help me help him to cope and get through this...
  • Noodle65

    Praising God for Platelets!!! And everything else

    I had my three month post remission labs and clinic visit today and the results could not have been better-praise God!!! My platelets are 99-higher than they have been since DX on March 22 2013-they were 98. My WBC is 4.6. ANC 3.2 and HCT 38!!!!! I cried like a baby. This has been the hardest 13 months of my life and I would not wish AML on anyone. But if I'm being completely honest, I...
  • worriedmom2014

    3rd Anniversary Post Transplant

    Today is Jeremy's 3rd anniversary post transplant and he received a clean bill of health from his transplant doctor!Hugs and prayers for everyone.Karen
  • Noodle65

    Celebrating 4 year 4 month AML DX in Baltic Europe

    Dear All,As I sit here in my Airbnb apartment in west Amsterdam with my three precious daughters and the love of life,  my heart is full of love and gratitude to almighty God. My redeemer, my healer, and the lover of my soul. Over 4 years ago I pleaded and begged God to miraculously heal me so I could raise my daughters who were 8, 10 and 12 at the time. Almighty God has blessed me with so...
  • deleted_user

    Alternative treatments for AML?

    Let me first say that I am not a doctor, nor an I am giving any medical advice. I am a daughter who loves her father very much and we, as a team, are doing everything we can to help my dad get through this.Another member here suggested I start this thread as we have been corresponding through email for months and he thought we should share all of our knowledge and experiences so that others may...
  • sgootee

    Inversion 16/ M4

    Just wondering if anyone on here has the same. I have been in remission for almost a year and was just wondering
  • Elleran

    AML in the elderly group >70

    My husband is 74 and competed a 7/3 inducation a couple of days after being diagnosed.  He is 2 weeks into full remission.Drs say the bad blast cells would still be present (but not evident) and to keep them at bay 5/2 consolidation treatment is an option.  However at his age there is a 10-15% chance that consolidation will result in death.  My husband, fit and young minded, does not want to...
  • manning


    Hi all!I am new to chat room/support group so please be patient. My dad was diagnosed with MDS a little over two years ago and has been on Vidaza for a little less than those 2 years. He has also been receiving platelets. But just recently in the last few months started receiving blood transfusions as well. Last week his Dr ordered a bone marrow test. The test came back yesterday and it shows the...
  • Noodle65

    How's Jimmy

    Hi Margaret,I saw your post today.  How is Jimmy, praying he is well. XoxoJulie
  • planxty

    Still Here!!!

    Hi all old and new. It's been a while and hate this new format.Just to let you know I've passed the 5 years since diagnosis and heading to the 5 year post transplant mark. It hasn't been without its drama from repeated pneumonia to the ongoing problem of cGVHD. AML is truly the gift that keeps on giving. For those who are new I was diagnosed in May 12 and Flt3 positive. I remember all the...
  • chicagomomof3

    High ferritin

    good news is I'm one year post stem cell transplant! Yay! Bad news is my ferritin levels are over 4500 which is iron overload. Dr wants to do therapeutic phlebotomy but says I'd need another central line. Ugh. Anyone else had this? Can I do it without a central line? 
  • worriedmom2014


    I thought I would give an update on Jeremy. Yesterday was 18 months post SCT for him and he is doing well. He is off all meds except an antiviral as his whites are still lower than normal by .02.He and his wife are planning their first vacation and looking forward to getting away for a few days.He has 16 months left on his ped psych fellowship and really looking forward to helping children in...
  • BV_

    Transplant not in remission

    My husband, 31, has AML.  He is not in remission (60%l blast cells) but Drs say only option is SCT (haploid) bc he failed two induction rounds.  He is doing a round 5 days clofarabin then 5 days of the transplant conditioning chemo, then one day of total body irradiation.  Does any one have success stories of someone being cured with transplant even without remission?  
  • TwoBoyz

    Big News

    1 became emotional when I saw this on the news this morning.  It sounds selfish, but I couldn't help but wonder "if only my dad and others had waited a few more years to get sick.". Sounds silly, I know.  But truly I rejoice for those who have a better chance because of this new drug.  I can't believe it has been close to 30 years since a drug has been...