Acute Myelogenous Leukemia (AML) Support Group

Acute myelogenous leukemia (AML), also known as acute myeloid leukemia, is a cancer of the myeloid line of blood cells. Patients with AML usually present with symptoms such as fatigue, bleeding, infection, prompting medical attention. An abnormal blood test reading will then result in further testing in a hospital with a hematologist to determine AML.

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  • Hi im a nervouse wife, mother of 2 boys 13 and 9. My husband was diagnosed 1 day before his 50th birthday and on his Birthday he went in for treatment. He said he didnt want to wait since aml is very aggresive. He was diagnosed with aml m4 intermediate/normal cytogenetics flt3 negative and np1 positive he started with 7+3. And today just finished 2nd round of consolidation with 2 more to go. His...
  • Dear Texas Chic and Sarah,I'm not an Aml Patient, however my husband, fought a long brave battle with AML. I hesitated to reply to your post, however, I really don't want you to think you are being ignored, here.This forum has been continually active for many years, however there has been a big change, in the format of the forum. Many people here are still getting used to the changes. Please...
  • Hi. I'm a 34 year old female who was diagnosed with CML about a month and a half ago. Ive been trying to put on a brave face and get through the days as they come, but in reality my life has been turned upside down. I went from being very very active, to being too tired and weak to do very much at all. So many things in my life have changed in this short period of time, and I am left feeling a...
  • Texaschic

    New Here

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    I was searching the Internet for more info regarding flt3 and came across this site. I was excited to find a support group! I am 43 and was diagnosed with AML on March 4, 2016. As you all know, that was a shocker to say the least. I had M4, inv 16 and was positive for flt3, c-kit and wt1. I completed induction therapy by the end of March and went onto to complete 4 months of high dose...
  • worriedmom2014

    Jeremy

    I thought I would give an update on Jeremy. Yesterday was 18 months post SCT for him and he is doing well. He is off all meds except an antiviral as his whites are still lower than normal by .02.He and his wife are planning their first vacation and looking forward to getting away for a few days.He has 16 months left on his ped psych fellowship and really looking forward to helping children in...
  • leapea1208

    Tony

    I've struggled with writing this for a while now as I know the words I'm about to say we're going to come as a shock and potentially frighten some of you, and fir this I'm so sorry and I debated not sharing at all. But I find strength in our group and I really need it right now. I apologize in advance for the stress and anxiety this might cause any of you going through treatment as I know...
  • Noodle65

    Transplant Team 2016

    Dear All,I am praising almighty God for the cure provided by SCT for Andy and John. We have some mighty warriors getting ready to travel the path forged by so many. Tammy from Chicago and Ev from Arkansas we are all pulling for you!!!Blessings,Julie
  • Hi everyone,I can't believe how quiet the board has gotten since the "upgrade". I check all the time for updates from Tammy, EV, Andy, Tony and others. It is like a ghost town on there. Just summertime doldrums I hope? For those on the list above, please give updates! We continue to pray for you all daily. Would love to hear what you are up to.For my question, I got sick for the first time...
  • This board has been so quiet. Does everyone simply just hate this new site? I have not posred partly because my brother continues to limp from day to day but the overall pic remains dim. I do follow updates here and not much lately. I pray for all on here and hope there is light and hope for all. PrayersTwilight
  • xuelan

    Composite posts

    3
    I don't know about the rest of you, but I have not been able to crack the code of finding the most current new posts or those posts to which new information has been added. If no one can set me straight (as I am not the most computer literate person), that would be great. If not, I propose that everyone simply post under this or another heading, so we can keep up to date with the progress of...
  • robem

    Update on Jimmy

    I'm sorry it has taken so long for me to update on my husband Jimmy. Since it's been so long I will give a little background. In the 1980s Jimmy was diagnosed with Hodgkin's disease and received a BMT in 1988. 25 years later in July 2012 he was dx with MDS/AML and again went on to receive a MUD T cell depleted BMT in July 2013 at Sloan-Kettering. Jimmy had some bumps in the beginning mainly...
  • Bou123

    Some good news

    Hi everyone, I haven't been very "vocal" in this support group but I keep up and read all your posts ever since I joined. I was diagnosed with AML in November 2013 and after 4 rounds of chemotherapy and no BMT I am still in remission. I have follow-up blood tests every 3 month my most recent results on June 15th were normal. I feel great and am quite active.Feeling very grateful and hopeful -just...
  • I had my three month post remission labs and clinic visit today and the results could not have been better-praise God!!! My platelets are 99-higher than they have been since DX on March 22 2013-they were 98. My WBC is 4.6. ANC 3.2 and HCT 38!!!!! I cried like a baby. This has been the hardest 13 months of my life and I would not wish AML on anyone. But if I'm being completely honest, I...
  • It's been two weeks since my dad has been admitted. We were surprised today with a surgery. He was put onto NPO status before I visited but he wasn't filled in about why he was put on that status. He finally asked the right person and come to find out they schedule him for sinus debridement surgery. THe doctor came in and they said that they found some fungus in his nose but not sure as to how...
  • Hello,This is my first post here so let me introduce myself: My name is Juan and Im from Spain. I heard from this groups and decided to look for support, advise and, of course, some "daily strength", even though there is an ocean between us.My father is a 75 years old man who has always been healthy with no mayor health problems, still working (as an architect), but diagnosed with MDS a year ago,...