cjmenjou
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- Previous PE was diagnosed 5 weeks after symptoms, so ultrasound found no DVT, both of the legs and the arms. Also did a cancer screening and saw a hematologist. The tests that were run were:the following were done at time of diagnosis with blood...
- well, I posted http://www.dailystrength.org/c/Pulmonary_Embolism/forum/9317872-off-coumadin-anxiety before, turns out my worst fears were true.On Feb 8 I had a normal D dimer. By last Thursday it was 1.8+, with positive for PEs on CT. No DVT...
- I was diagnosed in July 2009 with multiple bilateral PEs. Never found a DVT despite lower and upper body USs, never found a genetic clotting cause with a hematologist.My symptoms were that I was short of breath, starting during exercise then...
- Haven't posted here in a while. PEs July 2009, Coumadin for 6 months. Been off since Jan. Still get some shortness of breath/can't get a full breath, but I've had 3 d dimer tests since then, all normal. My pulmonologist is frustrated I think...
- well, it's been a long 6 month roller coaster, but i can't believe the 6 months is actually up. I was diagnosed 7/1, which would have me off the warfarin on 1/1. But I have been cooped up on the bike trainer for the last 6 months, I want to ride...
- I am about 3 weeks until I am slated to come off warfarin (this alone is unbelievable to me, the 6 mos. has gone pretty fast actually), to be followed with a couple D Dimer followups.I am looking for advice as to anything post -warfarin that can be...
- I have my follow up CT this Wednesday, and just putting it out there that I am nervous about it. PR Dx was on July 1, so coming up on 5 months of treatment. According to all my testing I am supposed to come off warfarin Jan 1. Just a bit scared...
- If there's one thing this PE experience has taught me (and it's taught a few....) is that docs don't know much about it.. how they form, why they form, how to treat them, etc. Yeah, tehy have theories and ideas, but the advice and info is all over...
- They never found a DVT for me, and I never had swelling or redness (did have a "pulled hamstring" prior to PEs but no one is sure that was a clot). Compression socks are all the rage in the running/tri community, but i am not sure they are the same...
- 3 months out from diagnosis today. I've had good days where I forget about breathing issues altogether, and then so so days where I can't always get a full breath. Lately been more of the good and less of the bad. Just had a run of about 5...
- So I kept hearing I would bruise easily, have bruises pop up, go black and blue from whacking my knees.Last INR was 2.0 and pretty stable. I've hit my elbow and my knee - HARD. kept expecting to see bruising, but they've never popped up. I know...
- Got the letter from my hematologist on Saturday, my battery of genetic blood tests came back normal, negative or insignificant, so I am continuing on a 6 month course of anticoags (Jan 1 would be the first day off).He has also recommnded having a D...
- and not son of a..... I am almost two months out from diagnosis. Gotten back to swimming and being active. I've had the occasional SOB here and there, just hard to get a full breath.But yesterday and today I have gotten that "feels like someone...
- I've spent the last 4 summers doing various races, tris,centuries, half marathons, etc. This has been a tough summer, had to cancel 3 pretty big races after being put in the hospital with my PEs on July 1. As everyone knows, breathing was a...
- 1. I had a Factor V done in the hospital on 7/1, negative, but the hematologist said that's the wrong one ??? Not the mutation, I guess. Anyway, hema took blood for a FV test on 7/15, and I still don't have any results.... I keep calling and...