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- Does anyone know if having celiac disease or gluten intolerance is related to CVIDS? I cant remember if anyone has covered this subject before, the reason I'm asking all the symptons for this is NOW popping up for me so just trying to figure this...
- It seems this time of year the corners of my mouth crack and bleed and then I get this raised bumps on my tongue that are extremely painful and sore, they disappear and keep returning, do you think it is from a virus and could they be my taste buds,...
- I need to figure out if EXTREME fatigue is normal a week before infusion, is this CVIDS caused, or just my general health. Does anybody else experience this. Can barely function, having IV tommorrow.
- well i just have to say i had my infusion tuesday down at white memorial in East L.A. no problem as usual, everything is going fine, when about 1 hour before i am done i get a call on my phone from a client asking if i could go sit with their two...
- I need a refresher, now that flu season is coming up. Do we get a flu shot, Do we get the H1N1 flu shot? Do we get a whooping cough shot, and if so do you get whooping cough once a year? And how often do we get a pneumonia shot? If anyone knows...
- Hi. I have been coming to this website for awhile. And I must admit I am one of the lucky ones, at least for receiving infusions with no problems. My question is: Is it because I have NO IgA that when they do infusions I DO NOT get any sort of...
- Hi. I am new to the dieting support group. I had a gastric bypass 4 years ago. I have since then gained 25 lbs. back, and it is coming back at an average of 2 pounds per month. I feel like I am living in a Stephen King horror novel like...
- Uummmm I just started a new "symptom" my eyes are constantly Red, and I mean red, if one more person stops me and says "whats a matter with your eyes, they're so red" I'm gonna scream. They do not hurt, so there is no infection, but they are just...
- Well, I was supposed to receive my infusion Feb. 2, and the pharmacy kept denying the request for the medicine. So I'm like WTF? Called to talk to nurse, she didn't know why they kept denying it either. Welllllll got a letter in the mail today,...
- Hi. I am looking to connect with people that have had the gastric bypass surgery and lost the weight, but have regained some or most of it back. I know I am not the only one. I want to talk to people about their personal experiences and...
- Hi. I am looking to talk to people that have had gastric bypass surgery and have lost the weight and have regained the weight. I want to talk to them about their feelings and their journeys and their experiences. Anyone out there? Please contact...
- Hi. I had a gastric bypass 3-1/2 years ago. The problem is this. I have gained 20 lbs. back in the last year. I went from 240 to 150 and now I am back to 170. I KNOW the weight is going to come back on. My body has hit the mark where it just...
- I have been told that one of the symptoms of CVIDS is fatigue. Now I never get sick anymore (yay!), it literally has been years since even a sinus infection. But I am chronically tired all the time. The way I deal with it is: Coffee in the...
- new here. seriously thinking suicide. cant handle it anymore. my husband has no work, his knee is badly arthritic, and he had an accident that left his right hand without 50 percent of his grip. I am on social security for a medical condition...
- Hey everyone in CA. I just received a message from a research with the PIDD program and they are getting together some patients for Nov. 2nd, in Westwood to participate in a study. It lasts 3 hours, they divide into 2 groups, IV and SubQ. I am...