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- Hi all, I am trying to figure out how to respond to someones post and how to know if they got it or not. How do I tell if someone has responded to me? I feel left in the dark.
- New here. Had my gastric bypass in 2007, I have had diarrhea since day one. I am exhausted, I have to go 20 times a day. Anybody else out there experience this? Dont say eat protein, makes no difference. Had colonoscopy, nothing wrong. ...
- New to this group. Can anyone recommend any resources, such as books, CDS, vitamins, possible ways to deal with insomnia? Today I take the bull by the horns and want to make a positive step towards dealing with this. Can you recommend any youtube...
- Okay, so new here, for now I am going to read everybody's post and get information. I am already seeing stuff I can relate to. Which is kinda upsetting to me, because I am taking 10 mg. of Ambien a night, and have been for several months. Last...
- Hi, I had a gastric bypass in 2007, and since then I have NEVER had a firm BM. Don't mean to gross anyone out, but I have severe diarrhea ALL THE TIME. I KNOW it is from the gastric bypass. I even went back to my surgeon and he told me nonsense. ...
- Hi, LONG time since I have been on this site. Need to be refreshed about some information. What is the lowest your levels can be right before your next infusion? Is it 600 or 800? The last week before my infusion, I just get SLAMMED with major...
- Does everyone know about the law that Obama passed about receiving IVIG treatment at home thru home health care? It should start 2014. It is for patients on Medicare. Yay! The IDF sent me a message about this. So only one more year of...
- I am 6 years post-op gastric bypass surgery, and have and still do suffer from chronic severe diarrhea. I have had all tests done, including colonoscopy and upper GI, and all stool samples, etc. Everything comes back NORMAL. I eat normal, no...
- Front page article on USA TODAY saying they are using Gammaguard IVIG in Alzheimers Patients, it "halts" progression, but does not "improve symptoms". Anybody read it?
- Had my first infusion with Dr. Church today, 30 grams. Called my other doctor (who has been treating me for the past 5 years, whom I will call Dr. X) and told him that Dr. Church said he (Dr. X) was not giving me enough, I have only been getting...
- OMG! Just got back from seeing Dr. Joseph Church at Childrens in L.A. What a wonderful experience, he knew EVERYTHING about my condition, he was so thorough and kind. I had the nurse write down how much gammaguard I was receiving and he just...
- I talked the doctor into infusing me after the 3rd week, and OH MY GOD I feel AMAZING!!!! I feel so good, lots of energy, have been riding horses, doing alot of walking, and running here and throe. I don't believe it, I AM SO SCARED this is all...
- I just got my levels back from doc. Igg was 474, it has been 2 weeks since my last infusion. Would these levels be considered normal for two weeks out?
- I am so fatigued, I just want to cry and give uo. Its all I can do to muster thru the day, sorta feeling like I could snap, or cry at the drop of a pin. Can't figure out if it is fatigue caused by the cvids or it is just massive depression. ...
- Hi Everyone and especially Briggzie: Just a note I am on SSI out in calif. and receive my infusions thru medicare/medical. I received SSI because I was cuckoo (sad, but true) mentally ill, due to the stress of dealing with the cvids. Not being...