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- Hey everybody that lives in CALIFORNIA. I just got an AUTOMATED call from the California public health department claiming we are currently having an epidemic of WHOOPING COUGH, or PERTUSSIS. They are recommending EVERYBODY 10 and older to call...
- Did everybody also know that we can't give blood? I was also told this by my doctor.
- I had gastric bypass surgery 3 years 2 months ago, I lost 80 lbs., I have gained back 30, is this normal? I try so hard, I am exhausted from dieting and trying, I just cant do it anymore. Is this normal?
- Does everybody know you are SUPPOSED to be wearing MEDICAL ALERT BRACELETS that states your disease? Its the first thing my IMMUNOLOGIST had me do when she diagnosed me. Should you ever have to go to the ER in an unconsious state, you need one. ...
- I had my blood drawn two weeks ago, to see what my levels were at, and then I went in after one week for my infusion, got the lab results and my levels were at (for IgG) 689, but it said that the normal range should be between 694-1618. Should I be...
- How do I know if what I am feeling is anxiety or depression? I just feel like I might go insane (literally), I can't relax, can't sleep. Is that anxiety or depression. And when does it end?
- Can't hang anymore, I called my doctors office yesterday and told them I want to get my blood drawn so they can show me what my levels are. I am exhausted and I want to see if there is any correlation. They will probably poo-poo me, but I am...
- When you have cvids and you get a cold, h ow do you treat it? I mean I am coughing all night, should I just take cough syrup and pray it goes away, and at what point do you need to see a doctor? This always confuses me, because in the past it...
- Well today I went in for my first Sub-Q treatment, and the nurses were joking with me about my spazz attack last month. They said that I did not even have any of the gammaguard in me when I started having chest pains. So I guess it was all in my...
- Just curious to know, would anyone join a gym knowing you have CVIDS? I ask, because I would really love to join one and "pump" my muscles, they are getting weak. But I am so afraid of all the "germs" on the equipment, espeically "staph", even...
- Hi. I am new. I have a 23 year old son that has been living with me for the past 3-4 months. He graduated from college in Dec. with a BA in Psychology! Went to Spain for four months, then came back. He is sick. I don't know what to do. I...
- God, I went to get infusion at 8:00 a.m. this morning, completely exhausted, waiting to get my GAMMAGUARD in my system to feel better. AND GUESS WHAT, the friggin Doctor and nurses could not do it, because the pump kept beeping and beeping and...
- I have not had my infusion that was scheduled for two weeks ago. Is it in my head or is it from the lack of medicine that I have major fatigue. God I feel so guilty cuz I just can't move my lazy arse. I am soooooo tired. Is it psychological or...
- hello, I too, am new to this group. Right now things are unbearable. My 23 year old son is living with me and he is driving me mentally ill! I think because I am absorbing his feelings and issues. He graduated college in dec. with a bachelors in...
- I went to get my infusion this morning as I have been for the last 2 years, and guess what!? THE DOOR WAS LOCKED AND THEY TOLD US TO GO PICK UP OUR RECORDS!!!! They ACTUALLY CANNOT PAY THEIR RENT SO THEY WENT OUT OF BUSINESS!!! I had no clue,...