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- Jack is in icu with sepsis. We were fine three days ago. His legs got swollen and he couldn't walk. We had no idea he had an infection. He wasn't feverish but had the chills for a short period of time. In a span of a few hours he's sedated and...
- Jack just had a BMB last friday. This is the fourth or fifth after starting ASP 2215. Thank God it's negative!!!Right now he's been fighting steroid induced diabetes. His sugars were at 473 last friday and the np ordered humulog ( a type of insulin)...
- http://meeting.ascopubs.org/cgi/content/short/33/15_suppl/7003?rss=1This is one of the earliest published results of asp 2215. It has astounding results for an oncology drug.Update on Jack, this past Wednesday he had his third BMB since he started...
- Wanted to give a brief update on the clinical trial. There were six patients enrolled in phase 2 at UCLA and now Jack is the only one. Liver enzymes are almost back to normal except one. He needs blood once every 1 1/2-2 weeks and platelets once a...
- Jack has been off asp for the past 13 days due to liver enzyme readings which reflect the stock market-unpredictable. His team has been in touch with Astella Pharm and decided that the liver problems are from GVHD and not asp. The team had decreased...
- This has been a tough month. As most of you know Jack was hospitalized late January with a fungal infection. He had granulocyte transfusions as a last ditch effort that were supposed to be two weeks long. It ended up being one month long with a...
- As you all know, I have been so excited about Jack starting asp2215. On Tuesday it was day 28, BMB eval date. Today the study coordinator told him the results - zero blasts! Prior to the study he was over 80% blasts and was on Hydrea. What a miracle...
- Hi Everyone,As you all know I was very excited that Jack had started on the ASP 2215 and we were doing pretty well, until two weeks before Christmas, he had an abscess which is not totally gone, but controlled. Anyways he was suddenly admitted back...
- Hi All,Just wanted to update everyone curious about Jack's asp 2215 trial. We are approaching three weeks into the trial. Apparently there was no dosage changes and there will not be any until after day 28 because on day 28 a BMB will be done to see...
- Hi everyone, just wanted to post an update on jack. Monday was pre-trial screening for the study. Ucla is doing the second part of this study. The first part was determining dosage. The patients are randomized into three groups -100,200,300. If...
- Just wanted to keep everyone updated since I have been looking forward to starting this trial since July.Thanks to the Lord that Jack was discharged out of the hospital on Christmas Day. He has to administer IV antibiotics himself everyday because...
- My brother, 40 yr old, was diagnosed 12/13 with AML FLT 3 TKD underwent BMT 4/14 with a complete match from me, the only sibling. Then 7/14 relapse with DLI in 10/14. He has been on a regimen of vidaza and sorafenib and then sorafenib only. Last...
- Does anyone have any experience with either the interleukin 3 study or BMT with active AML? We have a friend who's gene mutation looks bad and all the regular treatments have failed. His cell counts have not come down low enough to start the BMT....
- Does anyone know anything about DLI and outcomes? Let me do a short summary: my 40 yo brother was diagnosed with aml 12/13. I'm a perfect match and the only sibling so he went for bmt 4/14. Relapsed 7/13 very unexpectedly. He has had grade 3 gvhd...
- Does anyone know if ghvd can be treated? My brother got admitted two days ago for dehydration. We thought it was from the sorafenib. Apparently the nausea vomiting and massive amounts of diarrhea is from graft vs host. There's a new clinical trial...