DEEW4
Status: Love keeps me going! MG will not win!
Mood:
Ok
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- My doctor and I fought hard to get me the Rituxan. He, with his RN spent many hours with Medicare specialist doing peer to peer consults. I wrote to my US Senator, who has a medical specialist that also made appeal to Medicare on my behave.Long...
- Just wanted to report doing great on Rituxan. Also, had my IVIG yesterday. So, 2 infusions in in 2 days. I am doing great. My Neuro decided to keep me on my current schedule of IVIG while on putting me on Rituxan once a week for 4 weeks. He is...
- Thank you Angie on tip on how to get Medicare to approve. (Peer to Peer between my Neurologist and Medicare Doctor) It took a lot of phone time from Jennifer my doctor's nurse to make it happen.Thanks for info from Joe on his journey with Rituxan....
- Dear Friends,This has been a year of ups and downs health wise.We started the year in Hawaii. I think God blessed us because the rest of the year would be full of health problems for my husband and I.My husband was diagnosed with prostate cancer in...
- Good Morning,If you are on Rituximab and are also on Medicare, please let me know if Medicare covered the charges.My doctor has been unable to get a clear answer from Medicare. Since MG is off label use. I am struggling now. I know I am usually...
- Last Wednesday I took a flying dive off 2 tier deck into our back yard.. shattered elbow, broke lower 2 bones in arm in 10 pieces, snapped tendon.surgeon put humpty dumpty back together with artificial elbow, 2 titanium plates, 6 screws. to get to...
- I was noticing that Flutebell was seeing a sleep doctor soon. I wanted to let her and any other needing CPAP. At first I was given a CPAP and every night I choked trying to breath against the air flow. I got my pulmonologist, neurologist and...
- Hello friends,I am fairly stable on medication regiment. Yeah! My good news, I, with my adult son, put up 11 pints of applesauce. (the old fashioned way, processed in jars.I haven't used my apples in my yard for several years. Ya'll come on over...
- My good news! Feeling well. Started South Beach diet when I got back from Canada. I have lost the 3 pounds I gained plus 3. 6 pounds down.MG as stable has it has been in over a year.what's your good news?Dee
- I have only been part of DS since March. Curt sounded like a man after my own heart. I would like to read more of his posts. What was his DS "handle" name?It sounds like he was a character but one with wisdom or "grit" I like people with...
- Anyone know how Seattle Writer's surgery went. She had surgery on Tuesday. Dee
- For all the newer members. You really will enjoy Angie's post "You might be a MG'r if. There are 80 posts on the thread. Most will make you laugh.. you will most certainly find yourself on at least one.To get to old post go to "view all" at the...
- I was wondering if any of you have muscle cramps and spasms that twist your hand if you do repeated movement? My feet will often twist under. Painful but can be rubbed until they go back to normal.They may be due to other meds, ie Lasix and...
- I want to thank all Veterans for their service to our Country. I am grateful to live in a free Country. My husband is Vietnam era Vet. I especially thank him.I know all us MG'rs a suffering many different things. Most vets suffer in silence. ...
- HiI have been on Imuran (caused white blood count to drop below 2.) Cellcept ( caused similar wbc issues and Gi) Mestinon (stomach issues)Currently on IVIG only. Keeps me upright but does not help with auto immune systemSo, now for next round. ...