Hey there all..First off Dee wish I was closer I would grab some of that applesauce..Love that and sounds good!! Today Im afraid I have to dig deep for good news, unfortunately got an infection from my cat giving me some nasty scratches trying to get her in the house! But my sister is coming for visit from Houston for 5 days over Labor day so that is good news for sure..Havent seen her in ages and been trying so she will cheer me up..So Im thankful and happy for that..Now I just gotta feel better! But hoping that will do it so I can enjoy....Jacki

Way to go Dee!!

Just celebrated my 50th wedding anniversary with family coming in from Maine, Florida and Germany and friends from New Jersey and California. Reminded me that 49 years and 3 months had been MG free!

CellCept really making a HUGE difference in my life and happy to be tapering the prednisone.

Hi Dee ,

No surprise to me that you posted this Wednesday discussion , good for you :)

As of today I'm 7 days into absolutely no medications , no Mestinon , Imuran , prednisone , plex etc... I feel really good , did an 18 mile bike run to the beach and got my vitamin D as well ha ha.

Jacki , glad your getting a visit Labor Day weekend and hope you feel well soon .

Happy Wednesday my friends ,

Chris

That is GREAT news Chris!

I went to a band practice tonight and my flute playing was the best it has been in probably five years. I even hit most of the high notes after not practicing for months. And I wasn't breathing as often as the normal healthy guy beside me.

I'm sure that continuing to play while sick has been one of the reasons I've stayed out of the ER for 2.5 years. Flute playing requires strong diaphragm muscles!
Flutebell

Chris, so happy for you! Wish we all at your level of recovery!

Yes Chris sooo happy about your remission and your doing so well!!! Such good news indeed!!!! Keep up the good work....Big Hugs

A day late but the good news is the Ice Bucket Challenge is raising a lot of money for ALS. Any reseach under the Muscular Dystrophy umbrella has the potential to help us. Here's hoping for positive outcome.

http://mda.org/disease/amyotrophic-lateral-sclerosis

Larissa

I learned today from a penicillin challenge test (very long and drawn out process) that I am not allergic to penicillin, making me eligible for one of the trials that interests me. I am not likely to get in that one jus now, but a major hurdle has been cleared.

Today I had one of the best doctor appointments ever! I saw the doctor at the sleep clinic - a new young guy who happens to specialize in breathing issues and knows all about myasthenia!

I have my sleep test next week and he says he will be able to see a difference in oxygen levels to see if I have apnea or hypoventilation and that he is good at getting the government to approve a BiPap over a CPAP if needed, as he expects I'd need a BiPap in the future at some point with the MG. He asked all the right kind of questions and told me I was one of the most informed patients he'd ever had.

So good news Wednesday continued for many of us into Thursday. Hurray for all the successes here!
Flutebell

Awesome news everyone...I took care of myself where I could today and asked for help when I needed it. I realized that I have the ability to heal myself in ways that I was unconscious of previously. I am choosing love over fear as much as possible and when I make a mistake, I am forgiving myself and trying again.

It has been an absolutely miraculous day....love to all, Debra

awesome news, all! Especially happy to hear about the penicillin, Elinor!

My news is that I got a good report, a hug, and an all-clear from my surgeon to get back to regular life after thymectomy! I went to the gym for the first time since the IVIG circus/meningitis/myasthenic crisis of early June, and while I was slow and clunky, it felt good to move and work up a little sweat. :)