Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Just wanted to report doing great on Rituxan. Also, had my IVIG yesterday. So, 2 infusions in in 2 days. I am doing great.
My Neuro decided to keep me on my current schedule of IVIG while on putting me on Rituxan once a week for 4 weeks. He is working with National specialist on how to then wean me off IVIG and Prednisone
Now, if my veins hold up.
Thanks for all the good wishes and tips. Joe, Ross and Angie have kept me encouraged while in the fight to get Rituxan.
I love that most keep this site a positive place. When newbies come by, I hope they receive hope and not be afraid.
I haven't been in the MG fight for that long. Only 3 years. It is not a fight I expected in my old age. Oh well, at least I am above ground. Its a fight I hope to at least keep under control.
Peace
Dee
My Neuro decided to keep me on my current schedule of IVIG while on putting me on Rituxan once a week for 4 weeks. He is working with National specialist on how to then wean me off IVIG and Prednisone
Now, if my veins hold up.
Thanks for all the good wishes and tips. Joe, Ross and Angie have kept me encouraged while in the fight to get Rituxan.
I love that most keep this site a positive place. When newbies come by, I hope they receive hope and not be afraid.
I haven't been in the MG fight for that long. Only 3 years. It is not a fight I expected in my old age. Oh well, at least I am above ground. Its a fight I hope to at least keep under control.
Peace
Dee
For me it I found the Rituxan started making a real difference about 30 days after the first dose. I am at the point that I am having days that I can basically jog up the staris like they are not even there. Thats a strange feeling as for the last 3 years a set of stairs looked like a mountain. I have been blessed that this medication works.
I have one more session in 4 weeks and then it will be "as needed" for symptom control. I can request it as frequently as every 4 weeks if needed.
One good thing to report, was that todays infusion was the easiest to tolerate by far. I have had no side effects at all. The first 3 or 4 infusions I was quite tired afterwards for a few days and did get some minor rashes that cleared up with Benadryl. So for me at least it appears that my body has gotten used to taking this med and I now tolerate it quite well.
Best of wishes Dee. I hope this works for you as well as it seems to be working for me. This has been a real blessing to finally have some real relief from MG
Joe
Wellness