EssentialOilMom
Status: Just beginning to find my new normal on this journey.
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- Hi, my dr just prescribed and my insurance approved me to start using Migranal Nasal spray (DHE) for my migraines. I've tried so many other treatments and am so hopeful this will work. Has anyone used this medicine and had success?
- Hello friends, I am sure this has been asked a million times but I am struggling to find help for my daily headaches / migraines. My current preventative includes Effexor 150, 1 x day, trokendi 200mg, 1x day, the rest of my medications include...
- Hello dear friends,Just checking in to update you on my most recent health status. I was due to start my 3-day round of IVIg today but last Wednesday I started going into crisis. I was out with my son running errands. I had been pretty weak bc if it...
- Hi dear ones! Just checking to see if anyone has had any issues With taking neurontin. I was prescribed it last week for my neuropathy And am double checking on it. Thanks!
- Hi all, I am trying to get a variety of opinions on what everyone uses for their IVIg premeds. I am currently using 25 benedryl, 30 torradol, 130 Tylenol. I struggle with migraines as a result of the infusions. My awesome infusion nurses are going...
- I have been using Carimune for my Ivig infusions for the last 3 months and other than it helping me come out of crisis in June, I see little results from it on a monthly basis. Starting next month, I am switching to Bivigam ~ the biggest reason is...
- Hello Dear Friends,I am afraid that I am developing a intolerance to Mestinon. I have been on it for over a year - was officially dx this past October. I am taking 90mg every 4 hours in addition to 1 mg of Rubinol with the Mestinon. In the last week...
- Hi all, I hope this finds each of you surviving the heat and doing well! I have an IVIg question- when I first started IVIg, I was using Gammagaurd with premeds of benedryl &, solumedryl, and although I could tell great results physically, it gave...
- Hi, I started today the first of my three day IVIg infusion. This is not my first infusions - I have had probably 5. Today though was different. About 20 minutes after start I noticed that my stomach started feeling very upset - nauseous. I didn't...
- Hi, I've had a blood clot in my jugular vein since March when a medi-port was placed for my IVIg infusions - they have since removed the port and the clot persists. Last week I saw a hematologist who did a ton of blood work - one of the tests came...
- After 5 months of having my jugular blood clot I went to see a hematologist last week - he did a ton of blood work and called yesterday and said that my Factor 8 came back very high - and that I would need to stay on Coumadin indefinitely- Has...
- I've been on Coumadin since mid-March and since then have had progressively worse leg cramps and back spasms. I have done research online and there are not really any conclusive thoughts. What does everyone experience here? It has gotten so bad that...
- I know that I have not found anyone on here that has had an internal Jugular bloodclot but I am so frustrated and wanted to get your thoughts. ;) I was dx with the IJ clot in mid-March and was told that it is a "very sizable clot" ~ I was...
- So I am here not trying to be a pity party starter, but honestly seeking advice on how I get through this journey. The longer I am on this journey, the more difficult it seems to get. Now, I realize I have other things than MG going on that are...
- Does anyone have a suggestion for a migraine app? I downloaded one called Migraine e-diary. At first I thought it would be a great one, but it would never save my entries, despite me repeatedly hitting save. :) I finally gave up on it. :) Thoughts?...