Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I have been using Carimune for my Ivig infusions for the last 3 months and other than it helping me come out of crisis in June, I see little results from it on a monthly basis.
Starting next month, I am switching to Bivigam ~ the biggest reason is b.c I have a blood clot in my internal jugular vein and it is supposed to be a "low clot" formulation. If that makes any sense! :)
I am wondering if anyone has used Bivigam and if they saw good results from it?
Thanks!!
Starting next month, I am switching to Bivigam ~ the biggest reason is b.c I have a blood clot in my internal jugular vein and it is supposed to be a "low clot" formulation. If that makes any sense! :)
I am wondering if anyone has used Bivigam and if they saw good results from it?
Thanks!!
It sounds at least like your physicians are being pro-active in switching to a low-clot infusion.
I hope the regular Bivigam infusions will help you feel better, and I am certainly ELATED that you made it out of crisis.
Take Care!
Hope you do well.