Polymyositis & Dermatomyositis Support Group
Polymyositis (PM) is a type of chronic inflammation of the muscles (inflammatory myopathy) related to dermatomyositis and inclusion body myositis. The inflammation is predominantly of the endomysium in polymyositis, whereas dermatomyositis is characterized by primarily perimysial inflammation.
http://thehennegroup.com/
Oddly enough, I've received a Friend invitation from someone who lives in San Francisco where this group is located. I haven't responded as yet, because I don't know anything about this person.
I personally don't trust a stranger with my personal information.
The interview request mentioned getting better treatments - HA! HA! What.. more Methotrexate?
It does smack of WWII Germany too.
I sent a reply where I mention that my doctor is already doing a great job with my treatments and I declined the offer with the group.
I have a friend that is a police officer in Houston. His company insurance is forcing him to comply with some programs. It is like he is getting micro managed with what the company thinks he needs to do with his health. This appears to be the direction that some things are going and just another loss of our freedoms & constitutional rights.
Because client companies can be very private about the scope of their projects, that include new medications and disease prevention tactics, they forbid disclosure of certain information, like their names. And require very specific disease states. Sometimes they want focus groups with even more specific genders and sexual orientations (when it involves HIV), with quotas for each group. All and any information we ask is protected by HIPAA regulations. Including total protection of the person. Absolutely nothing is given to third parties and information is only kept, at the discretion of the participant, if they want to be invited for other paid studies.
Please contact me for any further concerns and doubts,
Bernardo Puppin
socialmedia@thehennegroup.com
www.thehennegroup.com
(415) 348-1700