I suspect we all have those thoughts creep into our minds. I work pretty hard to push it out. I can't worry about what if. I try to focus on today and living the fullest day I can. No one knows what is in the future so there is no sense worrying about it.

Easier said then done though. I think it is helpful talking about it with others. Luckily, my Mom is a social worker so I can "pick her brain" all the time. If you can't seem to get your worry in check, consider a good counselor. Many people with chronic diseases also consider anti-depressants.

My rule for myself is if my concern lasts more then 1-2 weeks, I seek help.

One of the reasons I keep working full time is it gives me something else to think about. If you don't work, I would try to find other things to fill your thoughts. Helping others, reading, hobbies, crafting, a pet. All will help you focus outside of your day to day disease management. I also think the longer you feel stable, the easier it is to assume you will be stable.

Hi Amber. Lexis has given great advice so I won't repeat it. It is normal to feel like this on a taper until the extra dose kicks in, its also normal to feel like this for bout ten days when you go down the taper. Its a slow business getting your Meds and taper right but you will. It took me nearly two years and that was with the right Meds first time round. Hope you feel better soon Amber, there is no reason to believe you will not get through this and be around to help others. Best wishes. Autumm

Hi Amberhere, DM/PM can be scary at times. I had a surprise stabbing pain in my brain last night that woke me up at 3 a.m. I found myself thinking things like "Is it appropriate to call an ambulance or will this feeling pass uneventful?"

I have always thought about issues that are important whether I am working or having free time. I know my DM forces me to consider my relationship with The Lord. It is important to have coping skills in place. This is a good time for reflection and considering what is important.

Autumn made a good point about tapering. Less steroid makes the whole body feel crummy. I found that certain foods, drinks or supplements may be beneficial for helping to feel better. My personal favorite drink is Gatoraid because it adds hydration, sodium, sugar and it tends to pick me up. Vitamin B12 has been very helpful for my mental attitude too. Listening to your favorite music can be inspiring and uplifting too. I like my daily bible study because it is the most helpful. I know this DM gives me an opportunity claim promises to trust and strengthen my relationship with The Lord Jesus. Activities approved by a doctor like swimming or an appropriate exercise is also helpful.

Do not hesitate to call a nurse or doctor if your sad feelings do not go away. My doctor never warned me about the crummy feelings from the reduced steroids. We must find different ways to cope with the different aches and pains. Remember that you will be feeling better too as you adjust. Try to be positive.