MaureenNY
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- Hi Folks, It's been quite some time since I have posted. I was diagnosed in late 2013 and at this point have gone thtough it all. thymectomy, prednisone, ongoing ivig and imuran all along my condition has deteriorated with two crises in the books....
- Happy Holidays!!!
- So i just got access to my original doctor an GP records via a new online program. Anyways.. when i was originally looking for answers they had the following:*Bronchitiis* Strokeand my personal favorite.*??????????????8 years of med school for...
- Hi Everyone, So i am going through a rough patch, yes, I try not to call them esacerbations or dare i suggest crisis. But Ive partnered with the docs every step of the way so I dont feel like I am in any TRUE danger at the moment. Anyways, so they...
- Hi everyone, I am trying to figure out if its me or my doctors are crazy. Clearly its one or the other.Went in for robotic thymectomy with a thyroidectomy at the same time on 7.8.14.. Woke up with a very hoarse voice which is not something to freak...
- Anyone heard this is a good treatment/vitamin/whatever for MG? I know we need to stick with the "protocol" but every once in a while I get a "wild hair" to go rogue and see if theres something I am missing....
- Here is the thread start for tomorrow so we don't forget:My good news is... Today was the best day i have had since surgery 4 weeks ago... I see a light at the end of the tunnel.. oh wait.. is it a train? Nope not a train.. a true light there off in...
- Hi everyone, I was recently diagnosed after I underwent a thyroidectomy for 1/2 of my thyroid. I had what they thought were benign nodules but was having a thymectomy for thymoma so they thought it was prudent to take the 1/2 since I was already...
- Hi everyone, I Am currently about one week post op from a thymectomy and thyroidectomy. Good news is that aside from the usual discomfort I am pretty healed in the surgical sense. Unfortunately I had a post op complication with a lung collapse,...
- Hi everyone, I had my thyme tommy on Tuesday, I was super hopeful I would be home by now, but some breathing problems have kept me boucing from stepson back to ICU. Regardless, aside from that pesky breathing thing, I am doing well. The extended...
- So, I finally have all my ducks in a row and barring any unforseeable delays I will be "minus my thymus" on 7/8/14. I will also be having my thyroid out at the same time, just to keep things interesting. I am having it done in NYC by what I read is...
- I know that MG dramatically affects your vision and mine goes in and out. Sometimes double, sometimes blurred. I have read that there are things you cand o with prism lenses etc. But I just rest my eyes when they get bad and I wont do the patch...
- Hi Everyone, Just a question, I am in the middle of a tapering of my prednisone, ok.. so maybe not realy them middle, basically I just started to taper but the doctors need to get the levels down for my thymectomy. Meanwhile i have started IVIG. Can...
- So, after everybody and their mother has told me I need to rest more, I've spent the past 24 hours in bed. Watched hgtv all day and napped wheni could. Hoping I wake up tomorrow with some spring in my step, wish me luck. So far, I feel the same.....
- Hi Everyone, After many twists and turns I am still in the same place I have been and for months. Voice and swallowing remain an issue and certain unrelated issues have slowed things down in the process of getting me to surgery for a thymoma. I have...