MaureenNY
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- Hi Everyone, Quick question, I know we need to take calcium and i have been and i just realized today that my calcium tablets have magnesium which is a no no in them. so I need a new brand to take. Anyone know what brand is best to take and the...
- Hi everyone, After chatting with a DS friend, we came up with an interesting topic. We all hope/pray/dream of remission and some of us (not me, not yet) have experienced it. But, it looks different for different people. Some consider it remission if...
- Correct me if I am wrong: As we all do, I receive plenty of well meaning advice, most recently I got a cold, a bad cold which everyone and their brother feels the need to comment. Anyways, they are all coming up with ways to "boost my immune...
- So I am having meetings with Surgeons for an upcoming Thymectomy. which is a long story and i can share once i have all my ducks in a row, but it appears that there are a lot of unkind, unresponsive doctors out there and i met one yesterday who was...
- Hi everyone, so far I have just been INCREASING my prednisone, but as I continue to consult surgeons on an upcoming thymectomy along with a myriad of other complications too complicated to even begin to explain, Ive been made aware that before...
- Hey folks, So my latest trip to the doctor has informed me that i have a 3.8 cm thymoma, which based on my sero-positive and confirmed via emg and bloods and the gods themselves, means that it should come out. I am not a huge fan of having my...
- So I have been informed by my spouse that all the information he has read says that people who are treated... go on to live normal lives... perhaps that is true.. but.... i was diagnosed in December, have not had a "good day" in weeks, my voice...
- Hey everyone, ive been taking mestonin for a few months now and I currently have a 4x a day rx. However, as most of you know if you have a longer or more active day you need more right? It lasts 4 hours at max and with a few crazy things going on at...
- Hi everyone, I am working with a new doctor, who i really like. Saw her last month, she added prednisone to my treatment and has sent me for some tests. Did the CT scan today and now the next visit to her office she warned me she would be doing an...
- So i have been tooling along.. measuring my days on a scale from 1-10, even measuring some days as high as a 7... did a huge trip for work and survived.... feeling pretty good.. stayed up a bit past my bedtime to catch up on some things today and...
- Hi everyone, Quick question, when did you start to see an effect of prednisone. I started taking it one week ago today, and am hopeful for some relief sooner vs later. I know patience and rest and mestonin are key to getting there.. just looking for...
- hi everyone, i am a full time sales rep who works on the road most often in hospitals if you can imagine the irony in that. I have 2 children and I am trying unsuccessfully to have a complete life. If i travel for a few days, i end up exhausted for...
- Hi everyone, i know that mestonin is the supposed wonder drug for this disease, and recently i have had my dosage up'd in hopes of getting my symptoms under control. I am now on 60mg 4 x a day and a time release overnight.. Does this sound excessive...
- Hi everyone, Does anyone have any solutions, other than mestonin, for slurred speech. it comes and goes but is back to pretty much staying around and i hate it.... im actually feeling a bit better but i dont speak well enough to do what i want/need...
- Hi everyone, I have a new symptom. When i say that i make it sound exciting I assure you it is not. Let me know if any of you have experienced this and if there is any source of relief you have found.*When I am up and moving for a while, my head...