Maureen, I came in here just before midnight to be the first to wish us all and Good New Wednesday. You win/we all win.
I feel as good as I have felt in many months. I am even able to pick up my feet when I walk instead of "Arte Shuffle" (you have to be old as dirt to know Laugh In).
Love you all, don't forget to pray for Elinor
Dee

Elinor's good news--on the path to clinical trial. Only first step, but she's moving forward,
Wellness,
And for me, Monday I felt normal - two years after thmectomy.didnt want Monday to end

hey guys so like this good news wed and look forward to reading more today...Im afraid last few days, not sure if MG related or not but have not been doing good so if ok would like my good news to be hearing that Elinor is on path to clinical trials..prayers for her...And all of your good news is mine also!! Love you all keep up the good work and Im hoping I will have good news of my own next week....HUGS

One thing I have missed most for the past two years has been being able to work around the house. Well.......(drum roll) Saturday I got to keep moving and redecorating, reorganizing etc. , did a Little cleaning , no scrubbing, I was SO happy! I did more on Saturday than in all Saturdays all together for this year so far. I am a little sore but I am still moving! Victory! Whoop!

In preparation for moving, I have been packing a few boxes each day and I am almost down to the point that I mostly have only daily needs stuff unpacked. Went by and checked the building site for my new house and they have stubbed up plumbing rough ins and will be pouring concrete tomorrow. I am supposed to go tomorrow and talk about window locations and the walls will start going up Friday. I have been noticeably stronger with no breathing issues since finishing plasmapheresis.

Had first visit today with pulmonologist since MG dx. Good news! He said that as my hair has yet to turn gray, it may stay dark brown until I,"... shuffle off this mortal coil." Nothing else all that good. HG007 p.s. Despite the test results, I don't perceive any breathing difficulties. ???

Reading everyone's good news and positive vibes makes my Wednesday better knowing my friends are fighting the fight , after all an object in motion stays in motion so keep it up all of you .

Cj

I've been tapering prednisone and this is my last week at 3mg. I've been very achy and I have noticed that the achiiness has subsided. Can't wait to get to 2mg!

Hi all, I almost missed good news Wednesday! Yikes! Hugs to all!!

My good news is I was just able to take a trip for a week, went to Colorado with my boys and did some hiking/climbing. It was heavenly. Just pushed plasmapheresis treatments to 1x every 10 days, which enabled me to go on a week long trip. All is well - there is hope :)

I just uploaded a picture from the trip - check out this MG'r on top of a big rock formation!

Wow!! Lots of Positive and Exciting news from everyone!! So good to hear. I'm a little late - still a newbie and didn't remember about Wednesdays.

My good news is that I got insurance approval for Rituxan and I start next Wednesday. I'm also feeling stronger and have been able to get out for short shopping trips.

Hugs to everyone. Its a marathon, not a sprint. :)

Oh, I'm late to the party! But happy to hear all the other great news, especially elinor's clinical trials.

My contribution: I'm starting to be able to leave home for little bits if time post-thymectomy, and I'm back to work (from home) for good chunks of the day. Starting to feel a little more myself!

Congrats to all, and thanks for sharing good news.

My good news for the week is I have had a pretty good week. My son is here visiting, so I am able to do things with him without having to try and hide not feeling well. He worries a lot so I try to hide when I'm not feeling well. Of course if it's really bad I have to tell him but the minor stuff I don't tell him. Having my son here has made me very happy.