SleepyT

I haven't gone into a flare, which is most excellent and surprising.  I have been so damn busy after coming back from my 'road trip' and what a 'trip' it was.My mother was full blood, mixed tribe...

Off on a road trip.  I hate road trips.  3 hours each direction for an 'obligatory' visit.I keep putting it off but need to go.  It's 7:30 am, sooner I leave the sooner I'll be there.Going to be...

Husband is watching an end of the world movie, The Road.  Love Vigo Mortenson but boring, boring, boring.  My husband is like, "God, I hope it doesn't come to that in our lifetime".Hmmmm.....how...

This does not happen to me often.There is a lady who posts - a lot - on the support group.  She is very knowledgeable and seems intelligent.She is also abrasive, condescending, insulting, assumptive...

I swear to God the same rash, same intensity plus some of my husbands ignorant attitude.So, OK check the Prednisone bottle, nope not suppose to mash up, add water, make paste, etc.  I get up at 4:00...

These hives are a major bitch.Thursday and Friday were really super pain filled. I figured up that I was awake for 18 hours between 8p Friday night and 10am Sunday morning.  Sunday I almost had a...

Just as promised my rash is coming on.  It'll subside by the end of the day and get better and better as the 1-6 weeks carries on.They put me on Prednisone, hence the tears.  I've lost 12 pounds...

Day 4Slept more hours than not.Crazy pain Friday and Saturday.Weird rash that waxes and wanes.So off I go, merrily merrily merrily merrily Life is but a Dream.....

Oh Wow.  Dear Jesus, I don't even know what to pray for.I'm sitting here shivering and sweating from the level of pain and am going in to work.I HATE calling in on a Friday or a Monday.Come on...

After posting on here about my horrible face I got some excellent advise on Derma Blend from my fellow Lupies.When I went to Macy's,  the department store that carries the product it in my area, I...

I thank God I have my friends here at DS.I am going to go upstairs, get ready for work...I'm going to call my Dr. for an appointment.  I am feeling suicidal and have been for months, more than I'd...

I guess it's remembering who I use to be.  I miss her so much the loss creates it's own pain.Who I am now, I don't like her so much.I thought if I could successfully forget, ignore, who I am now the...

My DS friends make me feel better.I feel less isolated.  I feel more connected.  I feel understood.Only here would someone understand when you say you can't believe your energy is gone and it's...

The room is not done.  I expected to be done by Saturday evening, now it's Monday.Oh well, should know by now not to set expectations so high.  Painted most of the morning and early afternoon. ...

My Lent promise was to not complain.I'm hoping that doesn't apply to DS because I'm here to complain.I feel like poop.  I've had a headache for 3 or 4 days, I forget.  Now I'm feeling really really...