mccourtjs
Status:
Mood:
Ok
Offline
- Hi All. I got my bllod work back and my immune system tests were all low ( IgM, IgG, IgA ). My doctor through her nurse suggested that I see an immunologist. I declined and will wait until I see my rheumatologist next week. I would like to know if...
- Does anyone have pain in their lower leg. It feels like the pain is in my bone. There is no pain when my leg is touched but it aches especially at night. I have to ease into walking after sitting due to stiffness. Any thoughts would be appreciated
- Prednisone helps me feel better but I know that it isn't good for me. So I have started another taper. I have been stuck between 7-10 mg for a few years. A few months ago, I started to taper and I am currently at 5 mg and have been here for a few...
- As I read posts of newly diagnosed people, I remember how scared, lost, and uninformed I was 3 years ago and understand how they feel. Finding this website and learning from all of you was and is a great blessing for me. I want to thank all of you...
- I've been approved to start Benlysta infusions which will replace thie IVIG Infusions. If you have any comments, insight, warnings, etc. I would love for you to share your experiences.
- Hi All. It has been awhile since I have been on the site. I have a new Rheumatologist,and she thinks that I have Lupus with myositis which she says is rare instead of Derm. I started on Plaquinil in November and continue to take my Cellcept and...
- How does MTX help someone that has DM? I want to stop taking it since it makes me sick for 2 days after the shot. Will not taking it make me regress? I know you will tell me to talk with my doctor but I still would like to know your thoughts. I...
- I have DM and would appreciate it if you would describe what a flare is like for you and what does your doctor do to treat it.
- My doctor recently prescribed Remuran for sleep issues related to prednisone and anxiety. I took 7.5 mg last night and felt groggy this morning. Any comments on the drug, its use, side effects, benefits etc.All comments will be appreciated.
- I had tapered my prednisone down to 6 mg and was taking 1500 mg cellcept, .8 mg MTX, and IVIG once a month, but I had a lot of pain and didn't feel great. A few weeks ago, my rheumy adjusted my meds to 10 mg prednisone, 3000 mg cellcept, and .6 mg...
- I am currently taking cellcept- 3000 mg or 6 a day, prednisone - 10mg and .6 ml of methotrexate. Is anyone else out there have the same combination of drugs. If so, can you talk about the pros and cons, how they have helped, dosages, etc, I would...
- Life has been busy so I have not posted in a while. I have successfully transitioned back to work, although very difficult at first and at the same time, began IVIG treatments. I had my 3rd treatment last week and felt as close to myself as possible...
- I met with my rheumy today about my DM. I love that man. My blood work looks good except for my sed rate that is still elevated. There was alsoone marker for Lupus in this blood work. However, my rash and symptoms are still significant. I will be...
- Do any of you have a hard distended stomach? I know that I have gained weight from the meds but my upper stomach is hard and feels like it is full of air not a lower gut that you get from weight gain. I also have a lot of stomach gas and burp...
- Does anyone take MTX and cellcept along with prednisone? I would love to hear from people with experience with this combo of meds.