Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hi everyone
I hope you're all doing ok :)
As most of you know, I started steroids a month ago and (Thank the Lord!) I have had a much more stable month!! Mestinon is working so much better and I am finally able to build up some of the stamina I have lost while being so ill all year!
On another plus..the anxiety I have experienced for years has actually got Better...something I was NOT expecting?! Perhaps the feeling stronger and more stable has given me some control and confidence back?? Either way, I am nowhere near as fearful as I have been,,, BUT, I have noticed chest and throat discomfort, like sore, over stretched muscles?? I now realise that I am not breathing correctly, I default into chest breathing rather than abdominal breathing and am probably overworking those muscles like mad!! No wonder they are tired and uncomfortable!!
This may well be down to years of anxiousness and a year of being very ill with no real help from the Doctors and a bad habit that I have ended up developing...but I wondered if any of you have anything similar?? Or any tips...I am trying to be more conscious of my breathing and retrain to abdominal but its harder than I thought...and the habit seems well formed!!
Thanks everyone :) x
I hope you're all doing ok :)
As most of you know, I started steroids a month ago and (Thank the Lord!) I have had a much more stable month!! Mestinon is working so much better and I am finally able to build up some of the stamina I have lost while being so ill all year!
On another plus..the anxiety I have experienced for years has actually got Better...something I was NOT expecting?! Perhaps the feeling stronger and more stable has given me some control and confidence back?? Either way, I am nowhere near as fearful as I have been,,, BUT, I have noticed chest and throat discomfort, like sore, over stretched muscles?? I now realise that I am not breathing correctly, I default into chest breathing rather than abdominal breathing and am probably overworking those muscles like mad!! No wonder they are tired and uncomfortable!!
This may well be down to years of anxiousness and a year of being very ill with no real help from the Doctors and a bad habit that I have ended up developing...but I wondered if any of you have anything similar?? Or any tips...I am trying to be more conscious of my breathing and retrain to abdominal but its harder than I thought...and the habit seems well formed!!
Thanks everyone :) x
I don't know! Maybe if we just keep practicing and reminding ourselves it will get easier? But, I guess plenty of people who don't have MG sit at their desks all day and only take rapid, shallow breaths, right?
http://www.drweil.com/drw/u/ART00521/three-breathing-exercises.html
I agree with you Vieve, as soon as I am not conscious of my breathing I find myself chest breathing!! Maybe you are right and all those months of MG being so bad have deconditioned the muscles! Hopefully with time, and hopefully continuing to be stronger we will slowly build strength again and breathe correctly!!
You are also right about plenty of other people no doubt not breathing right sitting in offices all day too!!
It is nice to know I am not on my own with this! Thanks again to you both!! x