autumm
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- Saw the Lung Specialist last week and all lung function better than last year so he does not want to see me for a year. Saw the Rheumatologist on Tuesday and he does not want to see me for six months. Still to have labs every six weeks until I see...
- Has anyone ever eard of B Cell depletion. I was wondering if it is something which may work for us. I don't have a scientific mind but I know some of you do and enjoy enquiring into these things. Would be interested in anything you find out. Autumm
- It was wonderful to wake up this morning and to know that Moorfields eye Hospital London has reached the stage where they can soon start trials on the work they have done on stem cell research for Macular Degeneration. They are reporting that...
- I have been on a strict 1200 calorie diet for two weeks. I have not put on any more weight but I have not even lost one ounce.I am eating mostly fruit and vegetables. I am walking as much as I can and I just don't understand it. Is it me is the...
- Gave up using my hair dryer a year ago as lifting it to dry my hair required far too much pain and effort. Thought I would try it yesterday and I did it. No pain or strain just muscles still a bit lazy, now, if only I could lose the wright but must...
- Delighted to read Wonup's journal and to read all her labs are normal. We were diagnosed at the same time. She has had the harder battle. She has fought with courage kindness laughter and strength. This is wonderful news to read. Wonup did it, we...
- Hi everyone. Saw the Rheumatologist yesterday and he is happy to see me again in September. Four months without going to the hospital for me is amazing. I asked if I could drop down the lab visits too and his answer was very interesting. I am now on...
- Hi Nanny. I send greetings fom my friend David from London. He has had high blood pressure for the past few years. Tried the Meds, hated taking them and stopped. His doctor here organised an exercise ECG and he had the results of a full work up...
- Well, one week on. Down from eight to seven mgs daily. Feeling ok now. Tiredness, fed up. Heavy legs etc all gone. This is one strange drug but it is making me better so got to just 'put up' and get on with it. Hope everyone else on taper are doing...
- Interesting story in today's Daily Mail about this vitamin and fatigue . I was so interested as we all seem short of it at diagnosis and we are all fatigued then too. Perhaps if interested you can access the article online. Autumn
- I started the taper down to 7 mgs daily yesterday. I know I will be fine this time next week but right now am tired and totally fed up. Just venting, its not easy. Autumm
- Hi there. I have been wondering how you are getting on with the Cellcept. You have had such a horrible time with the other drugs I am hoping this one works for you. Keep us posted. Best wishes. Autumm
- Hi Nanny. The Olive Leaf Extract is fantastic. I feel so much better taking it. I have been spreading the word and now half of London is using it. Thank you for telling me about it. I wonder if its helping me with the taper as well. Best wishes....
- Hi Everyone. I am going to Turkey next Monday. A four hour flight from London. This time last year I could not plan to walk round the corner. There is life after treatment for Myositis. Autumm
- Hello all. I wish you all a very Happy Easter. I am going to the Seaside to visit with friends. The first trip I have been able to do for a long time and am much looking forward to it. It is very cold in London and not like Easter weather at all. ...