autumm
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- Hello all. It's been a long time with no news of you all and I am certainly wondering how you are getting on. It seems so strange not to have news of you anymore. The few of us who were here are now over on the TMA Myositis site. It is so important...
- Hi all. I think we can agree by now that this site is no longer working for us. Everyone except myself and Nanny have drifted away. Some people can't even get back onto the site. May I suggest we all join up with TMA Myositis. It really is a great...
- Trpt is doing well. She is still unable to get on to the site. She misses everyone and sends good wishes to all. She is missing you Nanny. Autumm
- does anyone know how to correct mistakes in the text after posting. My iPad has a mind of its own and when I read things back after posting I notice mistakes. Impossible on this stupid new site to find out anything useful. Help !!! Autumm
- Trpt has been in touch with me. She is still struggling to get into the site but as yet is unable to do so. She has contacted DS but no one repleys to her so it's all a bit frustrating. Trpt is doing well but has a few issues at the moment and...
- its so sad that the new site is just not working. I do so hope all old friends are doing well. It would be interesting to hear how you feel about this new site. I think you have voted already as there are no new posts. Very sad. Best wishes to all....
- i saw my Rheumatologist 3 months ago and after the visit he called to say my CKs were raised and he wanted to see me again in three months to recheck the CKs and test my strength. I have just received a letter from him which tells me my CKs have...
- Daily Strength describe this support group as being for Teenagers with weight loss. I have sent many emails telling them to please correct it. They reply but ask me silly questions and don't seem to understand the problem. Could we all now email...
- Has anyone looked at a preview of the new site. It's the stuff of which nightmares are made. It asked me to re register to look at it but would not let me register but it didn't matter as it let me look anyway. Can't find anyone I know on the site...
- Recently seen my Rheumatologist for routine visit. He tells me my CKs are very slightly raised and he wants to see me again in 3 months to repeat the test. He says it is not worrying. I feel fine with no weakness. Anyone had this experience after...
- I was wondering today if we all have days when it feels like we never got Myositis. I had such a day this week. It was a warm sunny day here in London, very unusual for this time of year. I had loads of energy, walked for miles, did some housework...
- A very Happy Christmas to all. I do so hope old friends continue in good health and new friends find the right doctors and treatment as we have done. There is life after Myositis. Thinking of you all and thank you for being here these last 3 and a...
- I have been looking back on here to 2012 which was when I got my diagnosis. Reading the old posts I can't help wondering where everyone is and how you are all doing. It's wonderful to think you are all well and it would be great to hear rom any of...
- Moorfields eye hospital London has just carried out the first stem cell transplant for AMD. The cells were grown at University College London and the transplant has been done at Moorfields. All is going well and we will have more answers by the end...
- Saw my Rheumatologist today. He is very pleased with my progress. Don't need to see him again for nine months, that's a first. He tells me if I remain this well when he next sees me he will consider reducing my Azathioprine. That is good news and I...