autumm
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- Is it just me or is anyone else out there suspicious about the pushing of stem cell treatment. I am told by doctors here that we are years away from this being a treatment for Myositis. Suddenly everywhere I look it's being pushed as a treatment....
- Very exciting news over here from the Royal Marsden Hospital and the Institute of Cancer Research. A real break through which has just finished clinical trials and been presented this week to the meeting of the American Society of Clinical Oncology...
- A very Happy Easter to all here. I hope those of us who are well remain so and that the rest of us make good and steady progress. For those waiting for diagnosis I send my very best wishes and hope that the wait is not too long. This is my third...
- Recently diagnosed with Rosecea. Not sure what is the cause of it or PM. Have decided to cut my hair very short to grow out my coloured hair and to regrow it but not to use any chemicals on my head in the future. Would be interesting to know how...
- There is a new live discussion over on the TMA site all about the skin treatment part of DM. I don't have DM but thought this would be very useful information for those who have. Autumm
- Happy thanksgiving to all my friends across 'the pond'. This is our third Thanksgiving together. I am so grateful to have met you and had your amazing support during these years. Have a wonderful time and may your health continue to be stable or to...
- Two years ago this month I was diagnosed with Anti JO-1 Polymyositis . Having researched the Internet I truly believed I would not be here two years down the line. My Rheumatologist referred me for lung Function tests to a Lung Specialist in his...
- I have been thinking about all the people who were using this site when I joined at the back end of 2012. Are you all better and getting on with your lives. I do hope so. It would be good to have news of you as an encouragement to us all. Where are...
- It has been announced by Government here today that the UK is to invest 300 million pounds sterling into Gene research on cancer and rare diseases. This is a four year study with the aim of finding out 'why' we get these diseases and hopefully to...
- Just spent a great day at an open day for AMD being held here in London by Moorfields Hospital and University College London. This day was to communicate the research so far on wet AMD. This research had leapt forward in the last five years. We are...
- A very Happy Easter to all. To those still struggling with diagnosis and Meds at the start of all this I wish a good year ahead. To those of us a bit further down the line doing well, long may it continue. Best wishes to each and everyone. Autumm
- Saw my Rheumatologist for checkup. All went well and he does not want to see me until December. !!!!! I can have lab work done every two months instead of every five weeks. He tells me all my lab work is completely normal. I can stop the Alendronic...
- A very Happy Christmas to all on this site. I can't believe a year has gone by since I first 'met' you all. Please remain fit and well and enjoy this time. My best wishes to all. Autumm
- I have been tapering Pred for nearly a year now and tapering below 10mgs by 1mg a month for the last ten months. Below 10mgs has been the most difficult. Joint and muscle pain and weakness. I have pushed on with it on the absolute insistence of my...
- Am having intensive Physiotherapy now to build muscle and ligaments in my legs. Muscles are really sore from the work and I was wondering if massage would help and if so any particular kind. Any other ideas for the sore muscles. Thank you. Autumm