limpnoodle
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- I was able to chew and swallow soft and chopped foods today and it was so good. I got two grams of calcium today with my treatment and had some symptoms, but the nurse that was administering the procedure would slow down the pump and bump the...
- I had my. Second treatment last night. First machine broke down and another one had to be. Sent from Atlanta. For some reason the nephrologist here who is in charge of plasmapheresis did not want them to use calcium while doing the exchange....
- Got my first plex this morning . Went ok, but my eye symptoms, pain and focus problems have come back, I am thinking due to being back on prednisone. I am only on twenty mg this time instead of the sixty I was on before I went to Emory, so they...
- My local neurologist called me this morning and told me to come in right away. My test for L.E.M.S. came back raging positive. He put me back in the hospital and is going to do plasmapheresis. Does this mean I have to join another forum?Is there...
- Has anyone ever heard of mestinon being abused as a street drug? This is really puzzling to me because of the nasty side effects when you first start taking it.The only effect I feel from it is that instead of struggling to do my daily living...
- I have waited to post here until I got my jets cooled and tried to make sense of the nightmare I just went through. I was hospitalized on 1/17 by my local neuro to start prednisone and Ivig. He told me I would probably get worse before I got...
- I am thinking that my Ivig is finally kicking in and that is why I am feeling better. I had five days of treatment beginning last Saturday. I started feeling better yesterday afternoon, one week after completion despite the fact that they cut my...
- Does anyone know of a good neuro in the Southeast region,(Georgia or Florida) that treats mg without positive tests? Has anyone been to Mayo in Jacksonville, and if so with what results?Thank you for any help you can give me?
- Today they took out my feeding tube and put me on the regular floor. The doctor put me on a mechanically altered diet, which still requires chewing, the thing that causes me problems. Fortunately, I questioned it and got them to bring me purees. ...
- I am at Emory university in Atlanta ICU and had more EMG s today and the doctor says that without positive EMG, I do not have mg. I respond to mestinon 60 mg every three hours, but if the dose is late or I am over stressed, such as on the trip up...
- I just had my last Ivig today and still having huge swallowing problems. Have to have all pills crushed in applesauce. Tylenol is horrible. Had my mestinon increased to ninety every three hours and apparently that was too much because I had a...
- I hadn't read anything on this subject, so I didn't know if was an mg thing or not, but over the past few weeks I have had more and more pain behind my eyes, especially when trying to focus on something close. I have to look away or close my eyes...
- Last night I was getting mestinon every three hours around the clock and I experienced tiny little tics all over my body, especially in my tongue. They were not painful, but I worried a little that they would develop into spasms.Is this normal when...
- I have not been on this forum for a while because I was in denial about whether I actually had mg. I am fairly convinced that I have it or at least a close relative. My chewing and swallowing ability has been getting gradually worse over the past...
- For those that take mestinon, do you take it on a scheduled basis no matter how you feel? Or do you take it only if you feel weak? I have noticed that I don't need it so much in the morning if I am not doing to much. But I get weaker on into the...