limpnoodle
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- I am certainly not trying to compete with anyone in the procedure/surgery department, but I just got some news today.I went to the gastroenterologist today to see about an endoscope. Have to get one about every six months with Lems to check for the...
- I was on my way to plasmapheresis last Tuesday and was unusually weak. I thought of calling for help, but stubborn me, I knew I would feel better if I could just make it upstairs and onto the bed. I was breathing really hard, but willed myself to...
- Just wondering if anyone has tried the subcutaneous route rather than IV for IGG infusion. I have read that infusion reactions and side effects are less with this method, but would like to hear some first hand experiences from someone who has had...
- I am having a terrible time getting plasmapheresis, which I really need for swallowing issues right now. I finally got an order for Ivig. I had it for five days in January and did ok until about the third day then got way worse, but I was on a...
- Not gonna believe it till it's in my hands, but UF, Shands just called and gave me the FedEx tracking number for my 3,4 Dap which should be here tomorrow!!!
- I was hoping to be on my Dap by now and possibly not needing plasmapheresis as much or not at all. I try to be upbeat, but sometimes people and situations make it difficult. After the calcium shortage issue was resolved, I thought all was smooth...
- After only getting one treatment, there was a calcium shortage so I was unable to get plasmapheresis without it.My swallowing had deteriorated more this past weekend, so I called the neuro first thing this morning and got him to call the...
- The ambulatory care center called earlier today to tell me that the hospital pharmacist would not release IV calcium for my plasmapheresis tomorrow because there is a nationwide shortage of it and they are saving what they have for emergencies only....
- I went in for a colonoscopy prep on Tuesday and ended up just getting out today after two plasmapheresis treatments.I already needed to go in because my swallowing was not so good, but I was putting it off until I got these tests out-of-the-way.I...
- I never thought I would be so excited about the prospect of starting a new med, but.........I got the call today about the 3,4 dap! They are going to overnight the informed consent paperwork to me. Then I have to overnight it back to them along with...
- Have you had good results with breaking a timespan in half? I know you are not supposed to crush it etc., but they have a score mark on them for being broken.I just got timespan and have never taken it before, so I am afraid of cramps if I take the...
- I almost canceled my appointment with the ophthalmologist since I have had so many appointments lately and am quite tired of all of it by now. But, then I started to rethink it, and since my vision has been changing so much lately, and I had to...
- Today was my hospital follow up visit with my neurologist. He is sending me to a specialist in Jacksonville who is supposed to have a lot of knowledge of the Myasthenic diseases. My appointment is March 1st. I am hoping to stay strong enough to...
- In the past, I would just jump in the car and go, and if I changed my mind and decided to stop at to ther places, no problem.I have been running through my mind over and over trying to sort out all the pitfalls of attempting a trip to Walmart alone...
- The orders are in the works for me to be released today. Sitting here now waiting for someone to come in to remove my access port. But you know how hospital time lags behind real world time so I am not stressing over it.My doctor wants me to go...