I just had my last Ivig today and still having huge swallowing problems. Have to have all pills crushed in applesauce. Tylenol is horrible.
Had my mestinon increased to ninety every three hours and apparently that was too much because I had a crises. Got extremely weak after having had improvement. I am in ccu now and am being flown to Mayo tomorrow. I am hoping and praying they can get me straightened out there. This is no way to live. And yes mg does cause pain. My neck starts killing me the last thirty minutes of the three hour interval, and my vision is totally blurred and eyes are painful. Then it takes another hour for the mestinon to kick in. Then low and behold, pain is gone and I can see again.