I would try the prednisone without waiting. Even if the tests come back negative, you may well have MG. If Mestinon worked, that was a good test. If prednisone is magic, a better test yet. You seem too sick to wait to be treated.

I'm sorry you had to be hospitalized. You are right about drinking. It is a key to truly drink a lot of fluids, usually before, during and about 2 weeks after the IVIG at least those were my instructions to follow. Tylenol before starting each treatment it is important and also to start you on the IV very slowly. This to avoid secondary reactions like headaches.
Good Luck with the blood results!
Marcela

MG is a dangerous disease, and from this site, there have been many who ended up in crisis, incubated. You don't want that to be you. Left untreated, this disease can progress quickly. I had my ivig yesterday. It helped with my chewing and swallowing.
Be well,

That should have been "intubated".
Be well,

Sorry to hear about your problems. It is good you have decided to tackle whatever is happening. Ignoring some medical conditions does sometime work, but other times we have to just tackle things head on. For MG that means finding a neurologist you trust and can and will talk to honestly, and following their advice (at the same time learning as much as you can about what is wrong, and asking all the questions and expressing the worries to your doctor).

Good Luck! I hope it turns out not to be MG, however if it is, taking the medications/treatments, for the majority of us, do bring us back into a reasonably normal functional life. In my case, MG and its problems were vastly worse than the meds (for me right now, prednisone). It has brought me from a basket case to mostly normal again 8 months after diagnosis.

Thank you all for your responses. Turns out that Iga test had to be sent out and may take 3-4 days to come back. My dr consulted with a hemotologist for an opinion on weather I should go ahead and start the Ivig or wait on the test. He said wait, but in the meantime, my mestinon has been doubled and I have started on prednisone.
Initially I felt somewhat better. Both my eyelids are up for the first time in a while. But my chewing and swallowing are in the toilet.
They did a swallowing test this morning and I was ordered a soft diet. Lunch was late, I was hungry and it was a regular diet. The meat was a baked dark chicken quarter, reasonably soft and moist. I took one bite, it was delicious, I swallowed and it got stuck, but went on down.
So, as I have been doing, I chewed carefully on the second bite. My jaws instantly got fatigued and painful, so I had to stop chewing and sit there with that chicken in my mouth till I could get rested enough to take it out. There was no spitting it out because my tongue was exhausted too. Had to dig it out with my fingers, scary stuff.
It took a while, but they brought me the cutest plate with mooshed but shaped and formed food. The peas were formed in the shape of a pile of peas, there were mashed potatoes in the usual form, and a shape that took the form of two slices of turkey. There was gravy on the meatlet and the potatoes. I'm not sure what the meat was, but it was pretty good. Then ther was what looked to be three or four slices of fruit in a bowl for desert. I thought it was real fruit, but it was some sort of peach flavored stuff about the consistency of cranberry sauce. It was delicious!
I am looking forward to the possibility of getting back to the human race and if Ivig will get me there, then so be it.

Sounds like you are on your way to feeling better.

It will take time to get stable, but improvement is the goal.

Steady as she goes! Keep us posted.

Drink that water before, during and after IVIG.

PEACE

Sounds like you are in the right place! Take care let us know how you are doing.
Hugs,
Annette

Hi limpnoodle! Thank GOODNESS you are getting the help you need! It is important to wait for the IgA test because, if you have IgA deficiency, you could go into anaphylactic shock from the IVIG.

I am surprised it is taking so long for the test to come back. When I had foot surgery, they checked my IgA on the spot when I mentioned my history of IgA deficiency. Maybe it would be wise to make sure the test was sent out so you are not waiting needlessly.

Wishing you the very best!!

Rosie

Just be sure to never quit mestinon. I got so bad I couldn't swallow and they said I couldn't take it....big mistake..If comes in liquid form if you need it to.
Take care. I was where you are and you will be ok
Just rest
I got over tired in the hospital.
Ann

My iga had to be sent out too.same with my achr. Smaller cities don't have the labs.
Be well,

I was just gonna say, that I am not near a major city, so unusual things have to be sent out. It did come back normal today and I was immediately started on Ivig. I am feeling much better right now. Thanks everyone for your kind words. It means a lot!

Just wanted to add that the same food I was able to eat yesterday, I was not able eat this morning. I had a swallowing emergency. They brought me grits and soft scrambled eggs. I took one bite and it got stuck even higher up than the chicken had. Got that down waited a minute and tried the grits. My jaw and my tongue both jumped ship and I couldn't even open my mouth to get the food out. I called the nurse and the tech came and I couldn't open my mouth to speak, so I was able to slur through my teeth that I needed the nurse. She offered to bring me different food. I managed to get out that it was not the food, it was me. I said I need the nurse through clinched teeth. The nurse didn't show up until what seemed like thirty minutes later. By this time I was finally rested enough to finish swallowing what I had in my mouth. I had to really nasal speech through clenched teeth, but I was finally able to communicate that they should call my doctor.
I did manage after resting a while to get down some thin yogurt. I am so hoping this Ivig treatment will help with this.
When my neuro came in this morning, who is great, by the way, I told him about what had happened and that I thought the staff should be made a little more aware of my potential problems with mg.
Things have changed drastically since he left this morning. I think he made them aware of a few things as they have been very attentive and accommodating since.

Just wanted to send you blessings and light
Peace
Soulwife

Medical people are too often not aware of the special needs for MG patients. It is good that the doctor educated the staff about your problems.
Hope things improve soon.