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- i saw an old post concerning LDN ( low dose naltrexone). I have been taking it for neuropathic pain for a year now and it has helped with that, not made it go away, but it is more bearable. It also makes me more motivated and energetic most...
- I found this article on medscape and thought it was very interesting.http://www.medscape.com/viewarticle/840409Hope this link works.
- I asked my local neuro yesterday for something for my escalating burning neuropathic pain and he offered me either cymbalta or lyrica. I asked him which had the least side effects and he said they were about the same.I asked if he had ever heard of...
- I have been having plasmaphersis through a vortex port, so I have been using Emla cream (prilocaine and benzocaine) to deaden the area for needle insertion.Yesterday, when I got finished with plasmapheresis and went to sit up, my face and mouth were...
- I was researching neuropathic pain because mine has gotten decidedly worse over the past few months, when I came upon lipoic acid supplements that are supposed to help with this condition. My neuro approved of giving them a try since I was unable...
- After not being able to implant two separate vortex catheters because of occluded neck veins, I will be going back in next week for placement of a dual lumen vortex to replace my current tunneled catheter.None of my doctors are comfortable with my...
- Hope the new year finds everyone with more strength, better health and most of all, happiness in whatever situation they may find themselves in.Happy 2015!!!!!!!!!!
- I am going in the morning to have plasmapheresis without a catheter, but through the veins.I have to wait till the vortex port person gets off vacation to get implantable ports, so I am getting the treatment without a catheter. Hoping my veins stay...
- I asked this in another post, but thought I would put it in its own thread. I know there are some on here that have had implantable venous access devices installed. The Red Cross, who does my plasmapheresis, recommends two separate lines rather...
- I haven't been around for a while. I moved in August and was trying to recover from that and then was doing ok and getting out more.I also sold my house and caught up in all the decisions of building a new one. Never knew it was so much work!It is...
- I just got tested again for the B cells that rituxan wipes out and still didn't have any, so no rituxan yet. But I have become a lot weaker and short of breath , pulmonary function was 46%, doctor says this is horrible.I felt horrible when trying...
- For those who have had Rituxan, approximately how long did/have your beneficial results lasted?Either mine has worn off or I am dealing with something new. I have become considerably weaker lately.I just had my cd20 levels drawn today, but won't...
- Can anyone relate their rituxan experiences, either good or bad? I am due to get my first infusion next Monday, and I have to admit I am a little nervous. I can always deal with things better if I am more informed. Any tips to prepare, what to...
- I just got a letter from the insurance company approving after initial denial for rituxan treatments. I am hoping and praying this works for me.
- I went to the neurospecialist today and he ordered rituxan since I haven't been able to get my symptoms under control with Dap, mestinon and plasmapheresis. Just have to see if insurance will approve. He told me that he has had good results with...