Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I am having a terrible time getting plasmapheresis, which I really need for swallowing issues right now. I finally got an order for Ivig. I had it for five days in January and did ok until about the third day then got way worse, but I was on a lot of mestinon and high dose prednisone, so that could have changed my outcome. I am going to try it again and hopefully will get a good result because I can get it at home and don't have to deal with all the uncooperative people associated with plasmapheresis.
I am happy that you are able to do that at home. What a comfort that must be. I hope you have many healthy days to come.
Angie
Good luck!
-sherry
I have been on Dap for Lems since the middle of May, so was hoping I would not need it, but Dap has done nothing to improve my swallowing, so I am thing I need some immune regulation to help with that symptom.
I have been able to have protein shakes and other things as long as I blend it.
If anything, I think I need more mestinon, because in the evenings, when I am finished with my Dap dosage for the day, I experience a lot more weakness and eye drooping. Just gotta figure out the right combination of treatments that work for my needs.
Be well,