joyforalifetime
Status: married my best friend! :)
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- Hi all,I just heard from my doctor's office that all of my bloodwork looks great. My CPK is 61 !!!!!!!!!!!!!!!!!!!!!!!!!!!!!I asked the nurse to ask my doctor if I could decrease my MTX. I had been on .7 (whatever that is in mg...I go to .7 on the...
- does anyone here use essential oils for dm/pm symptoms? I am just starting to learn about them and haven't tried anything yet, but was curious to hear if any of you have used them. I hear such great things about hem
- Hi all!I apologize if this has already been discussed, I didn't see too much when I did I search. I wanted to ask you all if you have any suggestions or experiences that work for you when it comes to energy. I have a wonderful, full time job that I...
- my recent appt with my rheumy was a week ago, so I called to see if they had my bloodwork results back yet because I wanted to know what my CPK was. starting in the 4,000s we had it down to the hundreds for a good part of 2013. my doc always told me...
- hi all, hope you are well!i tried searching through past discussions but didn't find anything after a quick skim so i apologize if this is repetitive! i just wanted to see what people's experiences were with tapering methotrexate. i've been off...
- Did you know Myositis Awareness Day is this Saturday?! I had no clue! I found out on the TMA facebook page. I'm glad there's actually a day for it!!!Has anyone been able to find myositis awareness merchandise? I would love a tshirt and jewelry to...
- Hi all!! Thanks in advance to all of you for even reading my post and for the advice you will give! So thankful to have you all.I have been doing really well. I have been off Prednisone for almost 4 months now, and have only taken 5mg a day maybe 5...
- hi all!it's been a little while since i've been on here but i think of you guys all the time and hope everyone is doing okay!!i am happy to tell you that i am making my first attempt at being prednisone free!!!!! i have been at 5mg every other day...
- hi all! hope you are having a very blessed christmas season and are finding peace and joy in your hearts. my favorite line from a christmas song this season is "let your heart be light"-it's so easy to let our hearts and minds be troubled! just...
- !!!!!doctor's office just called w/ bloodwork results. my CPK level is 151 !!!! it was in the 400's at the end of May (in the 7000's when i was sent to hospital) clearly marriage has been good for me :) thank You, Jehova Rapha! my God continues to...
- hi all!had a good doc appt yesterday. they didn't end up charging me the $40 for the reschedule...so that's good? but the whole appt cost me $110 including blood work :( anyway...he was happy with how i'm doing!! said marriage must be agreeing with...
- hi all :)doing pretty good disease-wise! haven't had many complaints. last weekend i worked long shifts (9 hr and 8 hr) two days in a row (my shifts are normally 3-5 hours). and after the first night, my legs were in so much pain! i don't know if...
- hi friends :)the real reason i'm writing is to let you know that tomorrow i'm getting my feeding tube out!! i've had it for almost 5 months and haven't used it at all for a few weeks! i'm swallowing pills well, and eating normally. though this has...
- i searched through past discussions and was reading some previous posts about Prednisone Tapering but still wanted to ask and see if anyone had feedback or advice about my situation:) I was on 80 for 2.5 months, 40 for 1.5 months, and have been on...
- hi everyone :)had a doc appt today with rheumy. went very well!! he was so happy with my progress. i'm getting my meds switched over to pill form and will start taking everything through my mouth-and if all goes well we'll yank the stomach tube!!...