Polymyositis & Dermatomyositis Support Group

Polymyositis (PM) is a type of chronic inflammation of the muscles (inflammatory myopathy) related to dermatomyositis and inclusion body myositis. The inflammation is predominantly of the endomysium in polymyositis, whereas dermatomyositis is characterized by primarily perimysial inflammation.

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/ Polymyositis & Dermatomyositis Support Group

Myositis Awareness Day

joyforalifetime
joyforalifetime
Did you know Myositis Awareness Day is this Saturday?! I had no clue! I found out on the TMA facebook page. I'm glad there's actually a day for it!!!
Has anyone been able to find myositis awareness merchandise? I would love a tshirt and jewelry to show my support and spread awareness where some proceeds go towards research. I get so frustrated with Breast Cancer Awareness stuff being all over the universe, it seems like a fad!! Not intending to put it down AT ALL, i'd probably be decked out in the gear if i had a loved one with it. Anyway...if you have any suggestions and have been able to find anything, let me know!! :)
joyforalifetime
joyforalifetime
also, i'll be celebrating by going to Tennessee with my husband and his family!! :)
nanny1611
nanny1611
Here's a link to some myositis t-shirts. Another idea might be to design your own t-shirt. An office supply store might carry iron-on transfer paper onto which you could print your own personalized design with an ink jet printer. I used transfer paper several years ago, and had to remember to print a mirror image of my design, so that it would iron correctly onto a t-shirt. Don't know if it's still available or not.
http://www.cafepress.com/+myositis+t-shirts
trpt1
trpt1
Hi Joyforalifetime. The TMA has a fund-raising campaign called, 20 for 20. The association will send you cards and other things where you can collect 20 dollars for handing out 20 cards. The TMA also has a store where you can purchase myositis stuff that goes to support research.

I never had "myositis awareness" when I was diagnosed with DM. I simply had a good GP that knew a high CPK needed a muscle biopsy.

Our disease needs better and affordable medications. We take almost the same stuff that other autoimmune diseases use for treatment. Research needs to find a way to effectively deal with B cells & T cells without horrendous side effects.

I was thinking, you could always go to a hobby store for a blank t-shirt. Some stores will sell t-shirt paints and you could make your own cute myositis t-shirt - just a thought. In my case, I think it would be fun to put all of my overlaps on a shirt, and that would drop some jaws! HA!

Sept 21 is National Myositis Awareness Day. Thank you for your post.
lexisgirl
lexisgirl
If you have Facebook or Twitter, don't forget to post a Myositis awareness statement. Raising awareness can happen in many ways.