Polymyositis & Dermatomyositis Support Group
Polymyositis (PM) is a type of chronic inflammation of the muscles (inflammatory myopathy) related to dermatomyositis and inclusion body myositis. The inflammation is predominantly of the endomysium in polymyositis, whereas dermatomyositis is characterized by primarily perimysial inflammation.
hi all :)
doing pretty good disease-wise! haven't had many complaints. last weekend i worked long shifts (9 hr and 8 hr) two days in a row (my shifts are normally 3-5 hours). and after the first night, my legs were in so much pain! i don't know if they've ever hurt that much. that was last saturday and sunday...now it's thursday and i'm still feeling a tiny bit achy. i really can't do those long shifts in a row like that...hope my boss is understanding. i'm so frustrated though because i need more hours, and can have them whenever i want-but the job takes a lot out of me physically in a short period of time...so i need something where i can sit more, take things at my own pace, etc.
i need more hours because i am still paying off all my hospital stuff from last fall. we battled with my insurance company and finally got it solved. now working on paying what i owe, which is fine...but i have bills from 8-10 different places and continuing to add to it as i have checkups. my main reason for wanting to vent today is i was supposed to have a doc appt this morning. i don't get paid until tomorrow and couldn't afford the $70 charge today. (i haven't had to pay upfront before without insurance, so i guess i wasn't expecting to today). so they charged me $40 to change my appt. makes complete sense to charge me more than half the cost of my appt that i can't afford in the first place... i couldn't stop myself from crying all over the receptionist desk lol! i was so embarrassed and frustrated.
i was so excited for my appt today because i wanted to show my doc a picture from my wedding. i also brought a picture of me hiking a mountain in canada!!! who knew i could hike again? it was such a neat experience.
thanks for listening to me! i feel better after getting this out :) now to keep strategizing how to pay for everything medical, student loans, new car tires, life in general.....
doing pretty good disease-wise! haven't had many complaints. last weekend i worked long shifts (9 hr and 8 hr) two days in a row (my shifts are normally 3-5 hours). and after the first night, my legs were in so much pain! i don't know if they've ever hurt that much. that was last saturday and sunday...now it's thursday and i'm still feeling a tiny bit achy. i really can't do those long shifts in a row like that...hope my boss is understanding. i'm so frustrated though because i need more hours, and can have them whenever i want-but the job takes a lot out of me physically in a short period of time...so i need something where i can sit more, take things at my own pace, etc.
i need more hours because i am still paying off all my hospital stuff from last fall. we battled with my insurance company and finally got it solved. now working on paying what i owe, which is fine...but i have bills from 8-10 different places and continuing to add to it as i have checkups. my main reason for wanting to vent today is i was supposed to have a doc appt this morning. i don't get paid until tomorrow and couldn't afford the $70 charge today. (i haven't had to pay upfront before without insurance, so i guess i wasn't expecting to today). so they charged me $40 to change my appt. makes complete sense to charge me more than half the cost of my appt that i can't afford in the first place... i couldn't stop myself from crying all over the receptionist desk lol! i was so embarrassed and frustrated.
i was so excited for my appt today because i wanted to show my doc a picture from my wedding. i also brought a picture of me hiking a mountain in canada!!! who knew i could hike again? it was such a neat experience.
thanks for listening to me! i feel better after getting this out :) now to keep strategizing how to pay for everything medical, student loans, new car tires, life in general.....
Another idea is to sponsor a Myositis Awareness Fund Run. You could talk with The Myositis Association. Set up an awareness day where people give money to you and also to Myositis. You could sign up sponsors where people run or walk a distance for money. I would negotiate to keep half of the proceeds to pay your bills. I would talk to school districts to see if they would help your cause and provide lots of runners and sponsors. Good luck and keep us posted.
To .50 on the $1. This is without bankruptcy which I am not going to do. the United Way would know of some too. Maybe have a chat with your boss on hours and have then spread out or changing to more of a sit down job? Hope that helps-:)