tazesmom

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sun and flares

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so I am still trying to understand the sun connection,Mar wrote a great blog so I understand why it makes us sick,but I think I am in denial even though I was sick pretty much all last summer.the first few times I went out this spring I wore my big...
feeling good

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I woke up this morning feeling better than I have in years,I guess the methotrexate is starting to work,I still have a bad day or two after taking it and I am not 100% but way better,my husband keeps saying don't over do but I don't no how long it...
Tongue sores

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So I get sores in my nose,just got over a bad spell,I don't get sores in my mouth but I get them on my tongue,my tongue is either yellow or white with red bumps that really hurt,in the past I have showed my doc.but he was unconcerned so I don't even...
promethazine

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So my doc gave me promethazine for nausea that I am having a problem with when I take my methotrexate,I just went to take one and it says may cause nausea,go figure,also said it my cause drowsiness so I will wait until this eve.and hope it knocks me...
kidneys

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Just got the results of my latest lab work,my kidneys don't look like they are doing well,I have had indications of kidney involvement for awhile but this looks way worse,but of course i am trying understand by googleing what the results mean,I am...
Epstein Barr

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on my very long journey to being diagnosed I was told I had chronic mono,I do not remember having it when I was young,In reading on this and other sights I see alot references to a tie between E.B. and lupus,none of my doctors ever told me about...
methotrexate

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starting methotrexate today,can anyone give me some input on it,I forgot to ask how long before it starts to work(darn brain fog)taking folic acid with it,this is my 6th med I have tried so really hoping I can tolerate it,I so want to feel...
diet

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crystal you mentioned you are on a special diet that helps with inflamation,where can I get the info on it?or maybe Mar, my go to gal have do you have any info?
helpful hints

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Mechiko just asked how we fellow lupies keep up with our kids, I can't help there,I don't have children but that got me thinking,we all struggle with day to day household chores,what kind of tips can we share that we have come up with to make life...
restless leg,restless arms

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I don't think this is lupus related but not only do I get restless leg sometimes bad most times just moving helps but I get something I call restless arm and it is awful,moving does not help it is very painful and makes me feel very anxious,I just...
cold all the time

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is anyone cold all the time?I can't seem to get warm,even this last summer I was only able to sleep without socks for about a month,I get so cold it is paralyzing ?
do meds help?

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I was first diagnosed with fibro then r.a. now lupus and connective tissue I have had side effects to the first 5 meds they have tried me on waiting to start no.6.I used to have good days and even weeks but now it seems like I just feel really...

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