Lupus Support Group
Lupus is an auto-immune disease in which the immune system cannot distinguish between threats (like viruses and bacteria), and healthy cells and tissue. As a result, the body produces antibodies that inflict cell damage, most commonly targeting joints, skin, kidneys and the nervous system. Join the group and find support for coping with lupus.
I don't think this is lupus related but not only do I get restless leg sometimes bad most times just moving helps but I get something I call restless arm and it is awful,moving does not help it is very painful and makes me feel very anxious,I just want to rip my arms off it feels so awful,the majority of the time it happens at night and wakes me up,last night it took over 4hours to calm down,does anyone have this and how do you deal with it?
A ha... Yes I do... Drives me nuts.. Happens every night at 2 am and last till 4.30 am, mainly my legs but has lately moved to my arms. Have suffered for a decade plus....There is a support group on DS, pretty quite board though...
I usually get up, walk around and wiggle arms etc to not much avail.
Did try a Parkinson's disease medication called, Akineton (biperiden 2mg) sort of helped, though had to stop due to side effect issues. It supposedly helps with RLS probably off label though.
Started a neuropathic pain drug called Gabapentin for neuropathy and yaaay for some reason the RLS has stopped... it has been bliss for the last 5 weeks...
Hope you can find some answers and relief.... know how distressing it can be... Best wishes S