Livin-Right
Status: done
Mood:
Ok
Offline
- I am taking cell cept max dose, and my rhumy still saw inflamation in the lungs and lymph nodes. So he sent me to a lung doctor for a biopsyand added predisone to my treatment again. The lung doctor after reviewing my film he said what ever it is it...
- I finally replaced my retiring lung doctor. I think I like the new guy. after reviewing my films for the last year we are going to do a biopsy of both lungs and my lymph nodes. Freaked me out a bit. I expected the lung but have never heard anything...
- No matter what I try from toes to the top of my head I am peeling. Not like a sunburn where you can get big pieces. While i'm in the bath I have tried a loofah and all kinds or other things. the best way to try and get it off is rubbing my hand...
- likes and dislikes of course. I am taking zero Prednisone.......Yeah, Still taking cellcept. After about a week and a half I started having problems. I dont know if its called a flare, or what. I still have joint pain ,sob, muscle pain by the...
- Just checking how bad of a thing is this. I know strep can lead to rheumatic fever and scarlet fever, GP gave me 2 shots of antibiotics. And this Friday is my last drop on Prednisone
- Was at 40mg with directions to drop by 10mg till I got to 20. Then 15,10 and then 5. Seems it takes about three days to start feeling the effects, 40 to 30 was fine. 30 to 20 started to give me some trouble.last Friday I got to 15, today is my 3rd...
- Went to my current rhumy today who works once a week.Asked him if he was me would he find a different doctor to handle my case. His answer was yes.He previously left a pratice and is working on an medical information sharing support for the state....
- Your all great people and I am going to try and stay as positive as possible with this post. I am no longer sure I have anything wrong with me. Just as the pulmonologist said "the Interstitial Lung Disease resolved itself". I am still short of...
- I just wanted to thank everyone from the old veterans to the people who joined yesterday. Thank you for typing, for giving me a place to type. and not judging me for being weak or sad. You all have been a tremendous help and will never understand...
- It's a long story, but i will try and get to my Question quickly. I have been misdiagnosed for years on all sorts of things, but I haven't heard anyone speak of this. I would and still get flu like symptoms, pneumonia or sinus I would think. Through...
- Weeks ago I started telling the doctors that my lungs were starting to act up again. They blew me off for a while. My rhumy was dropping my predisone like me and everyone wanted. Next thing you know Im back in a ct machine, taking xrays and the...
- I hope someone knows what this is or what to call it. Basically 30 minutes or so after taking my night meds (2000mg celcept, Some supplements, and some pain meds to help me sleep, i take my pred in the AM and am down to 10mg a day) Anyway, I started...
- Hello everyone and yes I am still not a happy camperI have had swelling throughout my body, legs arms chest and face.I am down to 30mg prednisone as of today but am still taking 2000mg cellcept. I am also taking lasix and another water pill...
- I am considering going to any state, any hospital, medical research center to try and get some help. I understand John Hopkins has a large research center working on MCTD. Has anyone here tried this or know how to get the ball rolling?
- The first time we made a change I thought I was going to die within days.That was from 80mg to 60mg. Since then I'm on 60mg and on 1000mg cellcept.Tomorrow I'm going to change it to 40mg Prednisone and 2000mg Cellcept.I'm very nervous which is...