MCTD Support Group
Mixed connective tissue disease (MCTD) or Sharp's syndrome is a human autoimmune disease in which the immune system attacks the body. MCTD combines features of polymyositis, systemic lupus erythematosus, and systemic scleroderma and is thus considered an overlap syndrome. MCTD commonly causes joint pain/swelling, Raynaud phenomenon, muscle inflammation, and scarring of...
The first time we made a change I thought I was going to die within days.
That was from 80mg to 60mg. Since then I'm on 60mg and on 1000mg cellcept.
Tomorrow I'm going to change it to 40mg Prednisone and 2000mg Cellcept.
I'm very nervous which is stress and were sure that's a trigger now. And believe it or not, They want to do blood work next week because they said my numbers were all good, inflammation and such. Only thing that remained high was ANA and RNP and something else. I'm hoping there not going to find I need to go back up on Prednisone and I'm hoping the cellcept isn't whats causing all the pains.
That was from 80mg to 60mg. Since then I'm on 60mg and on 1000mg cellcept.
Tomorrow I'm going to change it to 40mg Prednisone and 2000mg Cellcept.
I'm very nervous which is stress and were sure that's a trigger now. And believe it or not, They want to do blood work next week because they said my numbers were all good, inflammation and such. Only thing that remained high was ANA and RNP and something else. I'm hoping there not going to find I need to go back up on Prednisone and I'm hoping the cellcept isn't whats causing all the pains.
slight increase in joint pain, but nothing to concern myself with. Heart flutters an hour after my pm dose of cellcept, but could have just been a random thingy. face seems to be doing a little more swelling today, but eyes are still open and tongue isn't numb. Since stopping the lovenox yesterday pain in my leg has increased. Still don't know why the clots are so abundant. 7.5 mg Warifin, Seems high from my history but normally I swing so bad on warifin they take me off. and try Kumadin. Home sleep study tonight also. Part time pulmonologist says(he's retiring) "There is some improvement from your last CT but I also see changes"
and ordered the new study. basically i have no idea.