Livin-Right
Status: done
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- My family caught the flu, strep throat and my wife had a sinus infection. I was sure I was going down, but I didn't. Im currently taking 7.5 mg Prednisone, 20mg mexthotextrate and was supposed to take humara weekly. due to miscommunications ,...
- Does anyone else have terrible days after there sunday dose. Im going through he~~ and hate it
- I feel instead of my normal banter or complaining i will simply state my constant issues.1. Pulse oxygen is fluctuating like crazy. As of now on sleep apnea machine w/ Oxygen. At about 5 to 6 pm daily i start feeling worse and shorter of...
- Just wanted to send everyone a hug but couldn't find a button to do it. You have all been amazing and the level of honesty in here is second to none. There isn't a better group of people anywhere. I know it helps me and hopefully helps you all to...
- Hey anyone who is still around. Seems like I am not seeing everyone lately. Just an update so people dont think were all gone. Sleep apnea clinic results. I quit breathing 79 times an hour. Seems to me with 60 seconds in a minute either that is...
- This is my second week on Methotrexate, humira and folic acid. They pulled me off the Cellcept finally. My sed rate (or inflammation makers) were still at 60 to 80. I am also still on 10 mg prednisone. and all kinds of pain pills. The previous meds...
- As most of you know I have been fighting for a short while compared to most. Currently I have lung involvement, vascular , joints and muscles. I am currently a 362 pound bald wildabeast. My meds were cellcept (which I think put the majority of the...
- As most of you know I have been fighting for a short while compared to most. Currently I have lung involvement, vascular , joints and muscles. I am currently a 362 pound bald wildabeast. My meds were cellcept (which I think put the majority of the...
- I didn't fall down. I didn't do anything to hurt myself. There are no visible signs of swelling. The GP says pinched nerves in my back. It came on all at once and has progressively gotten worse. I am trying to be practical and look at the obvious...
- Please be realistic. This is the second day of extreme pain. Lower back to the right of spine down to buttocks (buttocks lol) chest, as in muscles all joints, chest is tight. swollen in left leg to knee, right wrist and hand.toes feal like there...
- Did 2 ritucksin infusionsstill taking 20 mg prednisonedid blood work 2 weeks after infusionsHave been in more pain and more swelling than normal expecting him telling me how ritucksin didnt work.saw rhumy todaysed rate down from 80 to 38he is...
- A battle, a battle in a box. A battle inside. no other battles seem to matter.i am hit. i am hit again. why is there still light. why is there still life.corner store ammo, two a day, 4 a day, calling for reenforcements. My box of what is empty.my...
- Has anyone else started with joint pain, muscle pain, pneumonia, and after treatment starts it seemed to tick it off and now you have a long list of problems. That all still fall under MCTD. I think they woke the beast who was previously only...
- I am Having Dry skin on my arms and legs and head and some face. I tried lotions, Solid coconut oil. I have been taking a shower with head and shoulders like its a shower gel, and following up with a loofah and even a pumice stone. The dry skin is...
- Nasal biopsy came back good. But were staying on the cell cept. 8 pills a day,and nasty mean side effects for me. The Rhumy has started the war to get me 2 eight hour day infusions and another after 6 months. I asked him why we are still taking meds...