CarlyMichelle
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- My neuro-optho did a very thorough exam, ran many tests to rule out other things that mimic and/or cause it. He clinched the diagnosis with a lumbar puncture and clinical symptoms and he sent me for visual field testing as well to make sure I...
- I don't post much due to limited energy and time, but I want to share this with you all as a loving reminder to be careful about the medicines/supplements you may take.As you know, certain MEDS affect people with MG in different ways.After taking...
- I took this for my kidney stones and it wiped me out!My breathing was even affected. Carly
- I've come down with a nasty cold/cough this weekend. It's been rough and is getting worse. My asthma is still under control and ox levels ok, but I'm nervous. Why? That nasty dc68 virus! I don't want my kids to get my cold b/c it could be dc68! ...
- I just found out today that I have renal tubular acidosis.I've been on Diamox a lot over the last three years and am wonderingif it is the cause of my new kidney issue. My dr. says it's hereditary, but I read that acetazolamide can cause RTA...
- I'm not sure if this is MG related or not. I've had issues with voice volume and such before, but this is true blue hoarseness that's been around for 3 weeks now. I am now totally unable to sing at church, talk for long stretches, etc...A regular MD...
- Does anyone use 5-HTP successfully with MG?I'm looking for a natural anxiety medicine to helpwith a stressful trip we have coming soon.
- I'm going to ask my neuro about it, but I wondered if any of you had experience with it. This would be used for anxiety more than depression.ThanksCarly
- If so, what is your treatment?
- I know that my Diamox causes some tingling, but I've noticed a bigincrease in my burning neuropathy since upping my Mestion (Timespan plus another 60mg).I'm not on any other prescriptions, but I take B12 and D3 for those deficiencies.Carly
- We may be headed to MN/WI area in July.There's no AC at the family cottage. We're lookingat window AC units. Do you know of a good brandto go with? I know the regular oscillating fans won't benear enough. This could make or break the trip.Thanks
- Thank you for the uplifting words when I posted about being on the downhill side of MG. I'm doing better with more mestinon and have seemed to keep on that "plateau" for a few weeks now. I'm on 180mg now and doing ok. God bless you all!Carly
- I started taking the Timespan and felt better...for a SHORT while. (about two weeks) This week my eye started acting up badly and I've had episodes with my speech coming out of the blue and more frequently. The MD added more regular Mestinon and...
- I'm almost sure it was the intracranial hypertension acting up b/c I have had migraines as well. (I'm not on IVIG, Plex, or any immunosupp. drugs)Vision issues with MG seem to be more double vision and jumpy vision.What do your eyes do?Carly
- The more I read about this, the more I think this is the dx for me.I'm going to ask my neuro next time I'm in. I hear that Mayo is the oneplace that does testing for it. If the mestinon is working well, is it worth testing for congenital MG? Carly