Kayce1970
Status: I am back after a long absence
Mood:
Ok
Offline
- What do you think about the baclofen pump?Does anyone have a Baclofen pump?I am considering getting oneI am very nervous about it but I have so many spasms now I have trouble feeding myself or doing things or even driving my wheel chairwhat would...
- I have been dxed with optic neuritis.I do not know anything about it.Can it be treated?Is there anything they can do about the pain??I am on pain killers for the pain in my back and legs but for some reason it does not touch the pain in my eyes....
- How do you handle loosing yourself one piece at a time??The last 6-12 months I have been going downhill. slipping loosing myself.I live in a long term hospital.When I came here 2.5 yrs ago. I had allot more energy & ability.I used to stay up in my...
- I am in chronic severe pain.I do not want to take enough pain meds to get rid of it. They leave me tired & unable to enjoy activities here at the hospital.There are also some activities I can not do as they hurt me.I remember I used a TENS machine...
- I went to a seating clinic (for my wheel chair) today. I have been having trouble driving my chair. I tire easily & find it hard to leave my floor at the hospital where I live. I have hand & arm spasms & find it hard some days to leave my room....
- I am slowly losing more & more function.I know we all are.I am trying to deal with it, but it is hard.I live in a long term hospital so my options are limited I read to cope with anything. Reading helps me cope with the long nights of pain. Or when...
- I stopped coming to this site b/c it is very hard to type. Some days more then others.B/c I live in hospital I do have some extra help.I am thinking about getting my pc to voice control does anyone know anything about it?I am also getting a "cuff"...
- I am sooo Sorry I have been gone for so long I have been going through hell these last 6++ months let you know in parts as typing is hard for me.Hi to all of my friends and supporters I am still in Hospital over 2 yrs now have made a daily goal list...
- I have not been here for a few weeks.around 5 weeks ago it felt I had a bladder infection not abnormal I have a super-pubic catheter. When they sent it away it came back as growing two different bugs they gave a list of four anti-biotic that would...
- Arts & Crafts help me to get through the tough days,I live in a long term hospital.They help us with groups to do arts & I find it takes my mind off of what is happening to me & my friends hereit also helps me to decorate my room to make it more...
- This is just a weird thought I had the other day.I live in a long-term hospital, we have a few MS'ers most very disabled. anyway....I noticed we all have sneezing fitsthe worst one sneezes at least 4 x's day and 4-10+++ at a time (that I see)the...
- I get hiccups all. Every time I eat starch.Bread potatoes are the worst.I can eat very slowly but after 2-3 bits it hits they go away after a few sips of fluid.it is a pain in the A**.I asked my doc about it & he said it is part of my swallowing...
- I was invited to join & so I have.Love arts & crafts. quilting/ drawing/ inking / gardeningI am going to start to get back in plastic canvas as the cross stitch b/c of optic neuritis my close vision I am slowly loosingTake Care EveryKayce
- Trying to keep this on the positive sidee!!!!!!If you were to have a day where you wake up without MS symptoms or any thing else you have for a day/week!!!!!!I would go camping ruffing it,. hiking/ horse back riding/ canoeing / cutting wood for the...
- When I first had to live here at the hospital it took me awhile to except that I would not walk again or pee on my own again & a few other symptoms.Even though I was here I still had a life I volunteered at the sexual assault center worked on the...